2015

Hello friends, For those who didn’t hear, my grandma passed away the day after Thanksgiving.  We had a beautiful service for her this past Saturday.  We all miss her so much. :'(  It sure is different not to have any more grandparents living. On November 20th, my GI dr. called, and I got diagnosed with […]

Hi everyone, Just wanted to let you know that things medically are going ok with me, but my grandma (my only remaining grandparent) is not doing well at all and is in the last days of her life due to congestive heart failure. 🙁  It’s been so hard to see her decline…the hospice nurse thought […]

Hey friends, My liver biopsy last Friday went very well!  Thank you so much for praying!  The doctors were able to obtain two specimens without complication.  After the biopsy, though, my kidneys took a hit that weekend, and I suddenly gained 4 lbs. of fluid. 🙁  We weren’t sure what was going on and if […]

Hey guys, Just wanted to let you know that my liver biopsy is scheduled!  My GI dr. put the order in as “urgent,” so it’s for this Friday the 6th. This specific dr. performs complex image-guided biopsies.  He’s only 13 years older than me (wow!), and yet, he’s a Portland Monthly “Top Doctor.” 🙂  Very […]

Hey friends, Here are the latest appointment updates for you. 🙂 Rheumatology— The new rheumatologist I saw at OHSU is very nice!  She’s not 100% sure that I have the periodic fever syndrome “Familial Mediterranean Fever” because I only have one mutation versus two (FMF is recessive).  But, 30% of patients with FMF only have […]

Hey friends, Tomorrow, rheumatology is getting me in for the Periodic Fever Syndrome, and I’m so thankful to the Lord that it’s much sooner than January. 🙂  The appointment is at 1 PM.  Please pray that this specific dr. will be able to start treating it.  The numerous fevers are hard on my body, and […]

Oh I just can’t catch a break. 🙁 Last week, I had to say goodbye to my home care nurse. 🙁  She changed my central line dressing site and drew labs at my house every single week for 9 months.  Long story short, the home health agency she worked with got bought by a huge […]

Hello friends, Yesterday, I received some unexpected news.  A few months back, my hematologist referred me to rheumatology to get their input on why I’m still having persistent fevers.  I saw them end of July, and the doctor ordered an extensive genetic panel to test for all 7 Periodic Fever Syndromes that there currently are.  […]