Quick Update (about surgery tomorrow on 1/15) and Prayer Requests

Kerissa • January 15, 2020

Hi, friends!

My surgery (to replace my j-tube and also remove the vascular malformation in the bottom of my right foot) was originally scheduled to be done outpatient at the O.R. in the OHSU Center for Health and Healing at the South Waterfront.

But, I saw the “pre-op medicine” doctor last week, and after the appointment, she got in touch with the head of Anesthesiology and my surgeon.  Because I went into septic shock and had to go to ICU about 12 hours after my last surgery in 2018, they all agreed that this surgery should be done at the South O.R. up at the main OHSU hospital and then admit me afterwards for observation.

I hope and pray that I don’t go into shock again, but I’m thankful for all of my doctors who are taking these precautions.❤

I saw my pain dr. yesterday, and she set up a good plan and list of recommendations for the anesthesiology team.  She wants them to do a popliteal nerve block before the surgery which will numb the leg from the knee down.  In addition, she would like them to leave this catheter in my leg so that I can go home with the nerve blocking medicine continuously going into my leg for up to 3 days.  Their hope with this is that it will help prevent a Complex Regional Pain Syndrome flare-up.

I have to get to the hospital at 12:30 pm, and surgery is scheduled for 3:00 pm.  Even though this isn’t a big surgery, I have to go under general anesthesia and be intubated because of my central/obstructive apnea.

Would so appreciate your prayers that:

1. the GI team that is changing my j-tube after I’m under anesthesia can also figure out why a specific area near my tube has been so painful lately and why (TMI) it’s been oozing some yellowish-type pus. So we’re not sure if there’s a tube infection brewing.

2. my surgeon can remove the whole mass easily and that it doesn’t grow back again (I had this exact mass that I was born with removed in 2010, but it grew back in 2019).

3. my blood pressure, specifically, can stay up at a good range overnight without any issues.  I had dangerously low blood pressure in 2018, and that is why my body went into shock.

4. I will have the stamina and endurance to use crutches (I won’t be able to bear any weight on the bottom of my foot for 4 weeks).  It’s always hard for me to use crutches because I have weakness and fatigue from the mitochondrial disease.  Thankfully, I have my wheelchair for long distances whenever I go out, but I’ll have to use crutches in the house since our house isn’t wheelchair-friendly.

5. once the nerve block wears off and we pull the catheter out at home, that I will still have good post-op pain control so that I won’t have a CRPS flare-up in my foot.

6. I can be transferred to a private room once admitted and that I won’t have to share one with a stranger.  It’s hard enough getting sleep in the hospital, and it’s even harder to share a room with someone.

Anyways, I think that is all! Thank you soo much for praying for me!  I am so very grateful for all of you!!  As the verse that I lettered at the top of this post says, I know that the Lord is with me and will be there for me every step of the way.❤

I’ve had so many surgeries and procedures the past 10 years, and as a result of that, I have scars all over my body.  But then I think of these lyrics by Matt Redman which are so encouraging!

Our scars are a sign
Of grace in our lives
Oh Father, how you brought us through
When deep were the wounds
And dark was the night
The promise of your love you proved
Now every battle still to come
Let this be our song
It is well (it is well)
With my soul (with my soul)
It is well, it is well with my soul
By Kerissa Lee August 21, 2026
Dear friends, I just wanted to thank you all so much for praying for me during my abdominal surgery on August 6th! 💚 All of your messages/emails really encouraged my heart! If you missed my previous post, I had to have an unexpected surgery to take down the jejunostomy tract and repair an enterocutaneous fistula (a rare complication from having a j-tube for 12 years). I truly felt your prayers, and the Lord answered so many of them as well! 🥹 My surgeon only had to remove about 1 1/2 inches of my small intestine which is great news! I was in the hospital for 4 days because my blood pressure was low and pain control was rough (it’s a long story, but pain management is complex due to a specific medication I take daily at home..). But aside from that and having an allergic reaction to the surgical glue, I’ve been healing well. Thank you again for praying!! God has been so faithful throughout this journey. I got a visit from my sweet foster nephew when I was in the hospital (2nd picture)! 🥰 I can’t wait until I can show you his face—he’s so adorable. 🩵 I’ve mentioned this before, but an important medication I take causes severe insomnia (still not falling asleep until anywhere between 3 AM-9 AM). 😞 But I saw my naturopath this past Monday, and she’s going to treat me for suspected cortisol spiking up during the night (which disrupts the body’s circadian rhythm). I’m thankful for the wisdom God gives her, and I’m excited to see if this treatment will help! It will take 6 weeks to see if there’s any benefit, but I first have to specially order it.. 
By Kerissa Lee August 6, 2026
"God is our refuge and strength, a very present help in trouble." -Psalm 46:1
By Kerissa Lee July 25, 2026
Hi, friends, I thought I wouldn’t be posting for a while since I’ve been doing really well, but I’ve hit a bump in the road again and would appreciate your prayers. 💚 This past Tuesday the 21st, after nearly 12 years living with it, I had my jejunostomy tube removed completely. I thought it was going to be a simple process and that the stoma (hole) would close quickly within 30 minutes like they said. That didn’t happen, though, as the stoma started draining a ton! I couldn’t even leave the lobby and had to go back up to the clinic on the 8th floor to have an ostomy bag placed to collect all the small intestinal digestive juices that continually drained. Unfortunately, I’m experiencing a very rare complication called an enterocutaneous fistula. 🥺 I’m disappointed this is happening, but I’m not exactly surprised since my whole medical case with Mitochondrial DNA Depletion Syndrome has been rare from the very beginning.. I also don’t heal well due to connective tissue problems from Ehlers-Danlos Syndrome (case in point: my port site issues back in May when I had to have a new one surgically placed on the other side of my chest).. 😞 The clinic told me to keep emptying the ostomy bag and monitor the output. It wasn’t a fun 2 days. This whole process has definitely made me so grateful to God that I’ve never needed something like an ileostomy! TMI, but I lost almost a whole pound of fluid because so much was gushing/spurting out of the stoma every time I ate or drank. Losing so many electrolytes, I started experiencing symptoms of dehydration—weakness, high heart rate, and headaches. So yesterday, I had to go back and see the surgery resident who basically placed another j-tube (it was so painful again!). 😭 This is a temporary “plug,” and I’m bummed to say that I have to go to the operating room to have the jejunostomy tract taken down and the fistula repaired. This surgery will be happening as early as next week (it depends on my surgeon’s schedule).. She said it will be complex, especially because adhesions (scar tissue) form when a person has multiple abdominal surgeries.. I lost count what number this surgery/procedure will be, but I do know I’ve had more than 20! 😞 I know God is with me wherever I go and will supply me with the strength to endure yet another surgery like he always does. But, I’m still sad that I have to have more incisions added to my body. I shared the lyrics to this song before on an old blog post (the song is called It Is Well With My Soul by Matt Redman), but it immediately came to mind again when I was thinking of scars. As the song below said, it’s a reminder to me that my scars can be a testimony to others of God’s grace in my life and how he has brought me through every single pain and sorrow. In the Bible, I’ve always thought it’s so neat that Jesus still had his scars after he rose from the dead—he had a new body, and yet, his scars were still visible. ❤️ Our scars are a sign of grace in our lives Oh Father, how You brought us through When deep were the wounds And dark was the night The promise of Your love, You proved Now every battle still to come Let this be our song It is well (it is well) With my soul (with my soul) It is well, it is well with my soul