THIS IS MY STORY . . .

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Oct 16, 2022
Hi friends, It’s been a little while since my last medical update. I recently got back from another neurology appointment at University of Washington Medical Center.  This appointment was with a headache neurologist regarding my migraines and other neuro symptoms. It was a very thorough visit, and I’m so thankful the Lord answered our prayers for a kind and knowledgeable specialist.  He ruled out the possibility of Pseudotumor Cerebri and agrees with my other UW neuromuscular neurologist (who I saw 2 months ago) that my migraines are related to my Mitochondrial DNA [...]
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Aug 27, 2022
Hi, friends, I’m sorry it’s taken me a while to write a Seattle update on my neuro appointment. More than a week ago, our internet line accidentally got cut during construction—you never realize how much you use the internet until you don’t have it!! 😂 Regarding the “new” symptoms I’ve been experiencing since April (migraines nearly every day, sluggish pupils, buzzing in my ears, loss of ability for my right eyeball to look to the right, diminished peripheral vision, etc), my neurologist at UW basically thinks this is either a very atypical case of Pseudotumor [...]
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Jul 6, 2022
Hi, friends, It’s been a little while since I shared a medical update. To recap, I’ve been experiencing buzzing in my right ear, and I lost the ability for my right eyeball to look to the right. I’ve also been dealing with nystagmus and migraines about every other day (sometimes every day). My pain doctor switched me to a different migraine injection, but so far, it’s not helping. I just haven’t been feeling well. 😔 After talking with my primary care doctor, we’re wondering if there’s a connection to all of these symptoms. In addition, he and my [...]
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Apr 26, 2022
Dear friends, I’d really appreciate your prayers. The past few weeks, a bunch of different things have happened. I wrote in the past how I have an eye muscle disorder called Progressive External Ophthalmoplegia which is from my mitochondrial dna depletion syndrome. In simple terms, it basically means eye muscle paralysis. For several years now, I slowly lost the movement of being able to move my eyeballs to look to the left, then up, then down.. But I was always able to look to the right.. Well, up until a few weeks ago. I suddenly noticed that I couldn’t look to the [...]
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Feb 21, 2022
When I created this scene on my iPad, it reminded me of rolling, green hills where a flock of sheep could graze. 🐑 So this verse I lettered from Luke immediately came to mind. Almost 10 whole years ago (September 2012), I was in the ER for left-sided weakness and a left drooping eyelid (this was before I had my mitochondrial disease diagnosis). And my pastor came to visit me in the ER—he shared that comforting verse, and I’ll never forget it. ❤️ I had my endoscopy last week, and sadly, it didn’t give us answers we were hoping for. It mainly just ruled out things. 😢 [...]
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Jan 12, 2022
Dear friends, It’s truly been so long since I last blogged. I think almost 7 whole months?! It’s hard to believe, but 2021 was even worse than 2020 which is why the updates were rare. I just didn’t feel well physically and was exhausted mentally. 😔 My word of the year was “trust,” and I really did have to completely trust the Lord—as everything was out of my control. Some of the most difficult challenges of 2021: In February, I was taken by ambulance to Legacy Meridian Park hospital’s ED and was admitted for 8 days due to intractable vomiting and dry [...]
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Jun 16, 2021
I lettered this piece a couple years ago and never shared it until now.  I’m so grateful to God that He “does not leave us as we are.”  My earthly body is so broken from disease (more on that below), and to know that Christ will one day give me a new body—what a wonderful promise. ❤️ For the past 3ish weeks, I’ve been experiencing lightheadedness along with a severe, persistent headache every single day and night.  It’s been so very hard to go through as none of my pain meds have been helping much.  On top of mitochondrial disease, I have something called [...]
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Apr 10, 2021
Hi, friends. :) I just wanted to let you know what’s been happening lately. In the middle of March, I started losing muscle control in my arms/hands. 😔 If I’m holding something, my hand will flop but then regain control quickly. Or if I’m holding my phone to text, etc., my fingers will suddenly tap the screen numerous times with rhythmic, uncontrollable movements. There are many other examples, but it’s hard to explain unless I showed you. 😕 I had a virtual appointment with my neurologist in Seattle yesterday, and he thinks I have something called [...]
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Mar 7, 2021
Hi friends, *If you’re wondering why there are random bullet points, my website had an update, and when I press the “enter” button to make new paragraphs, it doesn’t seem to work. So using bullet points is the only thing I could think of to make spaces in between paragraphs. 😅 Anywho, I just wanted to thank you again SO much for your love, prayers, and encouragement these last several weeks. I hope I don’t sound like a “broken record,” but I truly am so grateful for you and your prayers as they helped me through that rough hospital stay. ❤️ For [...]
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Feb 1, 2021
Hi friends,   I would really appreciate your prayers.   It’s been a hard past several weeks.  I’ve been experiencing severe leg pain every day (especially at night....I’m not able to fall asleep until after 3 AM every night).  We thought it was due to my ferritin being low, so my GI specialist ordered 2 IV iron infusions.   But then, after looking at my weekly lab work, we saw that my blood calcium level has been continuing to drop (this is called hypocalcemia).  Hypocalcemia causes “neuromuscular irritability,” so my legs have been aching [...]
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