THIS IS MY STORY . . .

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Apr 10, 2021
Hi, friends. :) I just wanted to let you know what’s been happening lately. In the middle of March, I started losing muscle control in my arms/hands. 😔 If I’m holding something, my hand will flop but then regain control quickly. Or if I’m holding my phone to text, etc., my fingers will suddenly tap the screen numerous times with rhythmic, uncontrollable movements. There are many other examples, but it’s hard to explain unless I showed you. 😕 I had a virtual appointment with my neurologist in Seattle yesterday, and he thinks I have something called [...]
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Mar 7, 2021
Hi friends, *If you’re wondering why there are random bullet points, my website had an update, and when I press the “enter” button to make new paragraphs, it doesn’t seem to work. So using bullet points is the only thing I could think of to make spaces in between paragraphs. 😅 Anywho, I just wanted to thank you again SO much for your love, prayers, and encouragement these last several weeks. I hope I don’t sound like a “broken record,” but I truly am so grateful for you and your prayers as they helped me through that rough hospital stay. ❤️ For [...]
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Feb 1, 2021
Hi friends,   I would really appreciate your prayers.   It’s been a hard past several weeks.  I’ve been experiencing severe leg pain every day (especially at night....I’m not able to fall asleep until after 3 AM every night).  We thought it was due to my ferritin being low, so my GI specialist ordered 2 IV iron infusions.   But then, after looking at my weekly lab work, we saw that my blood calcium level has been continuing to drop (this is called hypocalcemia).  Hypocalcemia causes “neuromuscular irritability,” so my legs have been aching [...]
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Dec 31, 2020
Dear friends,   First off, I can’t believe I was able to write this on time, unlike the previous few years!! ;)   Secondly, this past year has been full of hard change—not just for me but for everyone.   In the middle of January, I had foot surgery to remove a vascular malformation that I was born with (I had it removed in 2010, but it grew back because it’s genetic).  Since it was on the bottom of my right foot, it caused a lot of pain to walk.   A week later after surgery, I noticed that the central line in my chest had a hole in it. [...]
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Oct 30, 2020
Hi, friends,   Wow, it’s been a while!  I just wanted to check in and post a health update. 😊   I’ve been home from the hospital for almost 2 whole months now which is so hard to believe.  Time is definitely flying, but at the same time, my recovery from the mito crash has been slow.   I’m still doing PT and OT at OHSU, and OT is especially hard.  Despite easy exercises that my hand therapist has me do, my arms and hands ache terribly the following day. 🙁  So we have to keep going one step back and try even simpler exercises.  My OT said it [...]
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Sep 22, 2020
Hi friends,   I just had some prayer requests again.  It’s been almost 3 weeks since I came home from the hospital, but I’m still really weak.  So in addition to physical therapy, my doctor referred me to occupational hand therapy at OHSU as it’s so hard to open/hold things, hand letter, etc. (the above piece is an old piece that I lettered more than a year ago).  I want to go back to my “normal” routine, but I’m not able to because of this weakness. 🙁  Please pray that I can get stronger and also be able to find a balance with working hard at therapy but not [...]
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Sep 6, 2020
Friends, could you please pray for me?  After spending 10 long days in the hospital, I was finally able to go home on Friday.   But it’s been very hard—I’m extremely weak all over, and I’ve also been having these horrible episodes where my heart rate shoots up, I feel hot and cold at the same time, have chills and teeth chattering, sweat a ton, and just feel plain awful.  We thinks it’s due to my dysautonomia (autonomic nervous system dysfunction from the mitochondrial disease), and it really scares me. 😔😢   Please pray that I will stay strong and trust in the [...]
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Aug 31, 2020
Dear friends,   Thank you soo much for your texts, prayers, comments, and messages on my last post.  I’m sorry I haven’t been able to respond to them, but please know that I am so encouraged and blessed by you. ❤️  It has been a very hard past 6 days here in the hospital.  Wednesday night around 1:30 AM was so scary.....after I received my first bag of IV N-Acetyl Cysteine (and the nurse was starting the second dose), my heart rate suddenly started pounding/beating super fast, I got very hot/feverish, I felt like I was going to vomit, my chest was really tight, and I [...]
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Aug 26, 2020
Hi friends, just wanted to let you know that the IV D10 infusions that I received for 5 days hasn’t helped this mito crash unfortunately, so my primary care dr. is directly admitting me to the hospital tonight. OHSU is filled to capacity sadly, so I’m getting admitted to Hillsboro Medical Center (which has recently joined/partnered with OHSU).   Here are a few things I’m thankful to the Lord for:   1) HMC has all private rooms so that means I don’t have to share one   2) my primary care dr. is so compassionate and caring and has been trying his hardest [...]
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Aug 19, 2020
Hi, friends,   I haven’t updated in so long, but I could use your prayers. ❤️  I shared this on social media last week but will share here for those who don’t know.  Last Tuesday, I was up all night with horrible, cramping abdominal pain, and I couldn’t fall asleep until after 6 AM. :(   I had an appointment with my GI dr. today, and I told him about what happened.  Given my GI dysmotility, he said it could have been a partial bowel obstruction....  We also discussed something called “intussusception” which is when the GI tract basically “telescopes” into [...]
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