THIS IS MY STORY . . .

/
Jan 3, 2019
Dear friends,   As I look back on 2018, it brings back so many emotions and memories....  But, I see God’s faithful hand throughout all of it once again.   There were many joyous and happy times....like when my family and I were able to spend 10 amazing days at Disney World/Universal Studios Orlando in February (a very, very special gift from some dear friends).  It was such a memorable trip.     But less than 6 months after that, I experienced one of the hardest things I’ve ever gone through—my body going into septic [...]
Written byKerissa No Comments
/
Nov 12, 2018
Hey friends,   It’s been exactly 2 whole months since I last posted---I’m sorry I haven’t kept you in the loop lately!   In October, I had a tunneled central line infection (thankfully, it didn’t spread to my blood).  My central line site was really tender and oozing a little.  So my GI specialist quickly started me on a 10-day course of Doxycycline (a very strong antibiotic I’ve never taken before).   Well, 2 or 3 days after I started the antibiotic, I came down with a cold (an antibiotic side effect that can happen).  It took me more than 16 [...]
Written byKerissa Comments: (2)
/
Sep 12, 2018
Hey friends,   It's been more than a month since I last posted....and sometimes, no news DOESN'T mean good news. :(  This will be extremely long, but I want to document everything to remember....so here goes!   About 24 hours after my hip labral repair surgery on August 10th, I went into septic shock (there are 3 types of sepsis: sepsis which I’ve had twice, severe sepsis, and septic shock).  Everything happened SO fast, and it was so scary and tramautic to experience. :'(  The Rapid Response team was called because my blood pressure got dangerously low, I had a [...]
Written byKerissa No Comments
/
Jul 25, 2018
Hey friends,   I’m sorry it’s taken me so long to write an update on how my neurometabolic appointment in San Diego went!   Been trying to pull all my thoughts together on what we learned at the appointment.   After updating my mito dr. on all that’s happened since I last saw him, he is thinking more and more that the POLG gene variant that was found in my whole exome sequencing is the likely culprit that’s causing my mitochondrial DNA depletion.   According to the NIH genetic reference site, POLG “is a DNA polymerase, which is a type of [...]
Written byKerissa Comments: (2)
/
Jul 2, 2018
Hey friends,   I got my MRI arthrogram results, and it shows that I do have a right hip labral tear. :(  So now I’m waiting to hear from the surgery scheduler to schedule orthopedic hip surgery.  Have to get insurance authorization first.  Can’t believe I have to go through the same process once again—-hip surgery was incredibly rough.... :(  I couldn’t bear weight on my affected leg for 2+ weeks, I had to use crutches, physical therapy twice a week was so very intense to try and prevent scar tissue from forming in the joint, and so much more...   Once I do [...]
Written byKerissa Comments: (2)
/
Jun 6, 2018
“When the storms of life hit, they almost always appear stronger to us than God’s word.  It is crucial for us to remember that our perceptions can be deceptive.  When circumstances strike fear into our hearts, the questions we must always ask ourselves is, where is your faith?  What God wants is for you to trust what He says over what you see.” ~unknown (I took a screenshot of this quote months ago and can’t remember who wrote it.. 😅)   Hey friends,   On June 4th, 2011, I graduated from high school.  That was seven years ago.  7 whole years. :(  It's been [...]
Written byKerissa Comments: (2)
/
May 1, 2018
Hey friends,   I’m sorry I haven’t posted in a while!  It’s been a pretty rough two months.. :(   The last half of March, I started experiencing severe, cramping abdominal pain, terrible nausea, distention (I looked pregnant! :( )....and just felt really unwell.  The abdominal pain started happening every few days to every single day.  Pretty soon it hurt terribly to eat (much worse than the usual pain from gastroparesis) and drink water. :(  Even pushing meds through my jejunostomy tube caused pain right away.  I lost weight and felt really weak.  Everything [...]
Written byKerissa Comments: (2)
/
Mar 16, 2018
Hello friends,   My family and I recently got back from an amazing vacation in Orlando, Florida!  I shared this on FB, but for those who didn’t know, a very kind friend and his wife wanted me to “make a wish,” so I chose Disney World/Universal Studios since I’ve never been there, and my family and I all had the most wonderful time!!!   The weather was so beautiful, the food was amazing, the parks, rides, and shows were all so very fun, and it was just so nice being able to get away from weekly doctor appointments and all things medical-related.   Anyways, this [...]
Written byKerissa Comments: (2)
/
Jan 31, 2018
“Faith means believing that God is good.  Even if we can’t see it today, one day we’ll look back and see clearly His sovereignty, goodness, and kindness.” ~Randy Alcorn   Hey friends,   Just checking in with a short update. :)   The flu season has been so bad....so other than going to my doctor appointments, I realized I haven’t been “out” since Christmas Day. :(  I just can’t get the flu!  It would be really dangerous with mito.  So I’ve just been staying home and hand lettering (my new favorite thing to do! ;) )....it’s already been 4 [...]
Written byKerissa No Comments
/
Jan 9, 2018
Dear friends,   Happy New Year!!!  I’m very late in posting my annual end-of-the-year “reflections” post, but better late than never, right?! ;)  I didn't get to post this on December 31st like I usually do or even at the very beginning of this year because I was feeling pretty sick from a terrible feeding tube infection (more on that below)....right after that, I caught a bad virus, and both of those together really took its toll.. :(   2017 was the hardest year health-wise, and I know I said the same thing in 2016’s “reflections” post...but each year [...]
Written byKerissa Comments: (2)