Another Hard Day

Kerissa • Dec 17, 2012

Everything is still raw, and I wept great big tears this morning, but I know all of you want to know the results of my MRIs, so here they are.  I don’t have the report yet, but in one word, they are “normal.”  I don’t understand. :'(  I’ve asked God all morning, “Why??”  I know I should be full of joy, but honestly, I’m so sad because this means I have to keep waiting for an answer.  I’d rather have bad news than still no answer.  I know how to accept bad news, like when I got diagnosed with CRPS and EDS.  But having no answer…that’s so hard.  These last 3 months have seemed like 3 years.

I have a follow-up tomorrow with my pain dr. and a follow-up on Dec. 27th with my neurologist.  Here we go again.  In her words, we have to go back to the drawing board.  I was able to have a short phone call with her this morning, and I have to say once again, that I’m so thankful for her.  She encouraged me and told me not to give up hope.  She’ll do all she can to help.  She’s still glad I had those MRIs cuz she was able to rule out a brain tumor or Multiple Sclerosis.  I hope to talk with her about the neurological side of EDS because I have learned that there have been cases of EDS with ptosis and myoclonus.

If she still can’t find out what’s going on, the Mayo Clinic, John Hopkins, or someplace like those might be in my near future..  Also, in March, I have a follow-up with my spine surgeon.  This past September, he told me that if I still have the headache in 6 months, then he said he’ll chase this more in terms of my cervical instability (which causes neck pain and headaches).

I am sad, but I know this isn’t the end of the world.  As this song says, pray that I will take courage, knowing that my Lord and Savior will defend, protect, and uphold me with His righteous right hand.

By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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