the day has finally come!

Kerissa • December 14, 2012

My MRIs are tomorrow!!  I’d appreciate your prayers that the myoclonus (muscle jerking) won’t be that severe as I have to lie still for 4 hours.  My neurologist did prescribe me a sedative, but I’m not sure how well it will work..  We’re all pretty nervous about the results, including my pain dr. and physical therapist.  It’s hard to believe that I’ll probably know the results by the time I next see both of them this coming Tuesday.  Whatever happens, I know God is sovereign, and for that, I’m so thankful.  This is the passage that I will be “taking” with me into the MRI tube.  What great promises!

This past Tuesday, my pain dr. squeezed me in to see him cuz an “egg” has been forming under my spine incision from the swelling.  I have poor wound healing from the EDS, and it was pretty difficult for my pain dr. to remove the anchor and leads from my spine, so he’s not surprised that the area is inflamed.  So he wants me to ice it every day.  Praying the incision doesn’t bother me too much from lying on my back for so long tomorrow.

My subluxating shoulder isn’t doing too well.  My physical therapist ended up having to tape it all over to keep the “head’ of my humerus bone from popping out all the time.  I’m to ice this area, also, and later on, my physical medicine and rehabilitation dr. will possibly be ordering an MRI of my shoulder.

Thank you for your prayers!!  My next blog post should contain the results, so stay tuned!

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23