Part 4 ❤️

Kerissa Lee • May 10, 2024



Read Part 1, Part 2, or Part 3 if you missed it.


| Part 4 |


That evening on February 20th, I was transported by ambulance back to the 14C medicine floor. It was such a scary time. 😢 The sepsis caused my body to go into metabolic acidosis. So they quickly treated that with IV bicarbonate and started me on broad-spectrum IV antibiotics while we waited for my blood cultures to come back. I became leukopenic and anemic because my bone marrow got affected. 🥺 This infection wreaked havoc on my kidneys so I continually had to be repleted with large amounts of IV electrolytes (especially potassium) each day. My blood cultures from my port ended up growing Staph Epidermidis. Knowing the cause of my symptoms was an answer to prayer, and the infectious disease doctors immediately started me on an IV antibiotic sensitive to that specific strain of bacteria.


I was admitted for 5 weeks + 1 day (the total from not only this stay for sepsis but also when I was admitted for the mitochondrial crash). Being in the hospital for 2 difficult diagnoses that happened back to back was the hardest thing I’ve ever experienced. I thank God for how he graciously gave some happy times in the midst of it. I loved seeing the therapy dog and was over the moon when the medicine floor kindly let my family bring my brother’s dog to visit me. 😊 I also had some amazing nurses. There was a special night nurse assigned to me, and I’ll never forget him. Even when he was no longer part of my care team, he came to visit me each night he worked—isn’t that so sweet? 🥲


But for the most part, inpatient life was scary and traumatic. And as I pondered these last few months, trying to make sense of it all, I was reminded of several things:


God never abandoned me in my darkest hour. ❤️ Being inpatient for weeks was brutal and like a prison (not once did I leave my hospital room because I had no energy). All those days, doctors, residents, medical students, phlebotomists, pharmacists, IV therapists, dietitians, respiratory therapists, CNAs, and nurses would continually come to my room. Not to mention every time medications were given or IV bags had to be started/stopped or when the multiple pumps alarmed. The exhaustion along with the pain was unreal. I felt so weak and helpless, not just physically. This challenging time reminded me that I cannot do life without Christ. Jesus said, “Apart from me you can do nothing” (John 15:5). And that is so true. During this whole trial, the Lord was the sustainer of my days. He gave me his strength, minute by minute.


Even though God always supplied me with grace to carry on, I want you to know that I still struggled with great fear while in the thick of it. When the pain and suffering overwhelmed me, it was difficult at times for my eyes to see him working behind the scenes. Numerous questions weighed heavily on my shoulders, and I felt so alone each day. But as I processed everything, this trial reminded me that no one knows and understands my suffering more than Jesus. ❤️ Matthew 8:17 says, “He took our illnesses and bore our diseases.” Isn’t it so comforting that Jesus knows what we’re going through? Even he had questions when he cried on the cross, “My God, my God, why have you forsaken me?” (Matthew 27:46) So when I experience doubts and questions in the future (whether in the hospital or at home), I pray that I will always take them to the Lord and not hold everything in. I’m definitely still a work in progress, though..


I wanted to close this mini series of posts by sharing a verse from Psalm 31:7 (ESV). What a coincidence that I’m 31 years and 7 months old! 😆


“I will rejoice and be glad in your steadfast love, because you have seen my affliction; you have known the distress of my soul.”


This verse sums up these last few months. God always sees my pain, and I’m never alone (even though it may sometimes seem like it). He has “known my soul in adversities,” as the New King James translation says of vs. 7. I praise God for his faithfulness and mercy on my life. I also want to give thanks to him that I’m back off the TPN (IV nutrition) and able to eat orally again like before! My muscle weakness has improved as well. 🥲 There are some other concerning issues going on, but I will share a more in-depth update later..


Thank you for reading Parts 1-4 and continuing to pray for me. This has been quite the journey, and I’m so grateful to have such faithful prayer warriors!! 🫶🏻

By Kerissa Lee August 21, 2026
Dear friends, I just wanted to thank you all so much for praying for me during my abdominal surgery on August 6th! 💚 All of your messages/emails really encouraged my heart! If you missed my previous post, I had to have an unexpected surgery to take down the jejunostomy tract and repair an enterocutaneous fistula (a rare complication from having a j-tube for 12 years). I truly felt your prayers, and the Lord answered so many of them as well! 🥹 My surgeon only had to remove about 1 1/2 inches of my small intestine which is great news! I was in the hospital for 4 days because my blood pressure was low and pain control was rough (it’s a long story, but pain management is complex due to a specific medication I take daily at home..). But aside from that and having an allergic reaction to the surgical glue, I’ve been healing well. Thank you again for praying!! God has been so faithful throughout this journey. I got a visit from my sweet foster nephew when I was in the hospital (2nd picture)! 🥰 I can’t wait until I can show you his face—he’s so adorable. 🩵 I’ve mentioned this before, but an important medication I take causes severe insomnia (still not falling asleep until anywhere between 3 AM-9 AM). 😞 But I saw my naturopath this past Monday, and she’s going to treat me for suspected cortisol spiking up during the night (which disrupts the body’s circadian rhythm). I’m thankful for the wisdom God gives her, and I’m excited to see if this treatment will help! It will take 6 weeks to see if there’s any benefit, but I first have to specially order it.. 
By Kerissa Lee August 6, 2026
"God is our refuge and strength, a very present help in trouble." -Psalm 46:1
By Kerissa Lee July 25, 2026
Hi, friends, I thought I wouldn’t be posting for a while since I’ve been doing really well, but I’ve hit a bump in the road again and would appreciate your prayers. 💚 This past Tuesday the 21st, after nearly 12 years living with it, I had my jejunostomy tube removed completely. I thought it was going to be a simple process and that the stoma (hole) would close quickly within 30 minutes like they said. That didn’t happen, though, as the stoma started draining a ton! I couldn’t even leave the lobby and had to go back up to the clinic on the 8th floor to have an ostomy bag placed to collect all the small intestinal digestive juices that continually drained. Unfortunately, I’m experiencing a very rare complication called an enterocutaneous fistula. 🥺 I’m disappointed this is happening, but I’m not exactly surprised since my whole medical case with Mitochondrial DNA Depletion Syndrome has been rare from the very beginning.. I also don’t heal well due to connective tissue problems from Ehlers-Danlos Syndrome (case in point: my port site issues back in May when I had to have a new one surgically placed on the other side of my chest).. 😞 The clinic told me to keep emptying the ostomy bag and monitor the output. It wasn’t a fun 2 days. This whole process has definitely made me so grateful to God that I’ve never needed something like an ileostomy! TMI, but I lost almost a whole pound of fluid because so much was gushing/spurting out of the stoma every time I ate or drank. Losing so many electrolytes, I started experiencing symptoms of dehydration—weakness, high heart rate, and headaches. So yesterday, I had to go back and see the surgery resident who basically placed another j-tube (it was so painful again!). 😭 This is a temporary “plug,” and I’m bummed to say that I have to go to the operating room to have the jejunostomy tract taken down and the fistula repaired. This surgery will be happening as early as next week (it depends on my surgeon’s schedule).. She said it will be complex, especially because adhesions (scar tissue) form when a person has multiple abdominal surgeries.. I lost count what number this surgery/procedure will be, but I do know I’ve had more than 20! 😞 I know God is with me wherever I go and will supply me with the strength to endure yet another surgery like he always does. But, I’m still sad that I have to have more incisions added to my body. I shared the lyrics to this song before on an old blog post (the song is called It Is Well With My Soul by Matt Redman), but it immediately came to mind again when I was thinking of scars. As the song below said, it’s a reminder to me that my scars can be a testimony to others of God’s grace in my life and how he has brought me through every single pain and sorrow. In the Bible, I’ve always thought it’s so neat that Jesus still had his scars after he rose from the dead—he had a new body, and yet, his scars were still visible. ❤️ Our scars are a sign of grace in our lives Oh Father, how You brought us through When deep were the wounds And dark was the night The promise of Your love, You proved Now every battle still to come Let this be our song It is well (it is well) With my soul (with my soul) It is well, it is well with my soul