Rejoicing in Suffering

Kerissa • May 10, 2012

I recently memorized Romans 5:1-5, and it’s a beautiful passage of Scripture!

“Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ .  Through Him we have also obtained access by faith into this grace in which we stand, and we rejoice in hope of the glory of God.  More than that, we rejoice in our sufferings , knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.”

My friends, my journey with CRPS and EDS isn’t in vain.🙂  That’s a truth!  This passage of Paul’s tells me that suffering produces many things: endurance, character, hope.  Which is why I aim to rejoice in my sufferings.  It’s not always the easiest, but I aim to rejoice in my finger tremors, the discoloration and coldness in my extremities, delayed motor responses, and the burning, aching pain in my feet, arm, and back.  I look at Paul’s life, and my sufferings pale in comparison to his.  He’s one of my examples—he boasted in his weaknesses because he wanted to magnify God’s grace and power in his life.  He had numerous imprisonments and countless beatings, often being near death.  He said, “Five time I received at the hands of the Jews the forty lashes less one.  Three times I was beaten with rods.  Once I was stoned.  Three times I was shipwrecked; a night and a day I was adrift at sea…in toil and hardship, through many a sleepless night, in hunger and thirst, often without food, in cold and exposure” (2 Corinthians 11:23-27).

As I go through the ups and downs, many times experiencing the CRPS pain skyrocket to an 8 on a scale of one to ten, I continually look to one of my life verses: “…I will rejoice, for I know that through your prayers and the help of the Spirit of Jesus Christ this will turn out for my deliverance, as it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body , whether by life or by death.  For to me to live is Christ and to die is gain” (Philippians 1:18-21).  As I said in my first blog post , even if you don’t have a painful chronic condition like me, join me in my goal!🙂

Matt Hammitt has another song called Let It Bring You Praise, and it’s exactly my prayer.🙂

Update: On Monday, I had my blood drawn in my right arm—two big tubes of blood and one little one!  It went well.  IVs are definitely worse.😉  And praise God, I didn’t get a CRPS flare-up in my right arm!🙂  I just have a big bruise at the site from the EDS because my blood vessels are very fragile.  Anyway, still haven’t heard from my dr. regarding the lab work…hopefully soon, but as the saying goes, “No news is good news!”😀  I’m now taking duloxetine for the pain, and it’s giving me relief already even tho’ I’m not at a therapeutic dose yet.🙂  Still on the waiting list to see Dr. Kern at the pain center for biofeedback.  He’s booked up till June 15th!!  Physical therapy’s going great.  It’s been a long process, but I can now lift my right arm sideways about 145 degrees as opposed to 90 degrees when I first got the varicella vaccine back in March!🙂

By Kerissa Lee January 21, 2025
Hi, friends, First off, the piece of art above was hand lettered by me last year before all “this” happened. I’m sad to say that I only have 3 or 4 pieces left to share until I run out.. 😢 I went to see my neuromuscular neurologist in Seattle on January 8th. My neck weakness continues to progress which has been so scary. He said I need to get a neck MRI and some specific blood tests to check for polymyositis. If it is normal, though, his opinion is that this is mitochondrial disease progression. 😔 I haven’t seen my mitochondrial specialist in San Diego in more than 3 years (I started seeing him in 2014!), so I’m sadly no longer considered his patient. The neurologist sent a new referral to him, but I’m not sure if it will be accepted.. He’s almost 80 years old (one of the pioneers of “mitochondrial medicine”). And I don’t know if he’s cutting back on “new” patients.. Even if he did accept my case again, I’m currently not physically well enough to fly down from Oregon.. 😞 My quality of life continues to worsen ever since this unusual neck weakness started this past October. I know I’ve said this before, but I truly miss doing all of my favorite things (like hand lettering art) or even simple tasks (setting up my own IV infusions, vacuuming, washing hair, etc.). 🥺 Before October, I was even starting to drive to physical therapy or the grocery store. Yes, I’m 32 and still don’t have my driver’s license due to being preoccupied fighting mitochondrial disease for almost 15 years now. I never shared the exciting news that I was able to get my driver’s permit over 2 years ago, and it was so fun to drive myself to appointments close to home. Now, I can’t do any of the above which has been difficult to process. I shed tears every now and then just thinking about all that has changed. 😢 I’m having to go to bed around 6:30 PM to lie down and rest my neck. But I’m so uncomfortable from the pain, and I don’t fall asleep until after 3 AM every night. So my pain dr. referred me to palliative care. 😢I know it’s not hospice, but I’m still sad we’re at the point where I even need palliative care. Unfortunately, they’re most likely going to deny the referral (if they haven’t already) because we were told they only see cancer or heart transplant patients. I even checked if there’s palliative outside of OHSU, but they, too, see only oncology. It’s so hard that cancer gets a lot of funding, research, and support, and those with rare diseases are left “on their own.” It’s isolating and lonely. 🥺 I saw my PCP again, and he is just the best and full of compassion. ❤️ He placed the neck MRI as urgent and also ordered more labs to keep pursuing answers since all this is such an atypical picture if it was mito progression.. In case palliative turns my case down, my dr. told me that the internal medicine clinic has a complex and chronic pain management clinic (different from the pain center that I’ve been going to since 2011). He referred me to them to try and help me get more comfortable. I have a wonderful team of doctors and an amazing naturopath, but I’m even going to see a functional medicine doctor for the first time on the 23rd. Praying he could maybe have some additional insight on everything and will offer some fresh ideas for treatment as well.. I also have an appointment with the metabolic geneticist on the 28th.. I’ve read through the Bible more than once, but it’s amazing how the Lord points us to specific verses at just the right time. I don’t know about you, but sometimes I think, “I don’t remember reading this before!” Paul David Tripp’s newest devotional Everyday Gospel has been so very encouraging. He shared 2 verses from the book of Genesis where Jacob said that God “answers me in the day of my distress and has been with me wherever I have gone” (35:3). Several chapters later, Jacob also said that God “has been my shepherd all my life long to this day” (48:15). When I read that, I felt such peace. God spoke to my heart to remind me that He is with me and for me….in every circumstance no matter how hard. ❤️ Could you please pray that I can have the MRI completed this month and not have to wait many weeks? Pray that all of my doctors will have wisdom as my case is so complex. Lastly, could you pray that I will persevere and keep walking by faith? I feel so weary, not only physically but also mentally and spiritually. 😥 Thank you so much for praying for me all these years. ❤️
By Kerissa Lee December 13, 2024
"He alone is my rock and my salvation, my fortress; I shall not be greatly shaken." Psalm 62:2
By Kerissa Lee November 9, 2024
“Be still, and know that I am God.” -Psalm 46:10 
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