Rejoicing in Suffering

Kerissa • May 10, 2012

I recently memorized Romans 5:1-5, and it’s a beautiful passage of Scripture!

“Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ .  Through Him we have also obtained access by faith into this grace in which we stand, and we rejoice in hope of the glory of God.  More than that, we rejoice in our sufferings , knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.”

My friends, my journey with CRPS and EDS isn’t in vain.  That’s a truth!  This passage of Paul’s tells me that suffering produces many things: endurance, character, hope.  Which is why I aim to rejoice in my sufferings.  It’s not always the easiest, but I aim to rejoice in my finger tremors, the discoloration and coldness in my extremities, delayed motor responses, and the burning, aching pain in my feet, arm, and back.  I look at Paul’s life, and my sufferings pale in comparison to his.  He’s one of my examples—he boasted in his weaknesses because he wanted to magnify God’s grace and power in his life.  He had numerous imprisonments and countless beatings, often being near death.  He said, “Five time I received at the hands of the Jews the forty lashes less one.  Three times I was beaten with rods.  Once I was stoned.  Three times I was shipwrecked; a night and a day I was adrift at sea…in toil and hardship, through many a sleepless night, in hunger and thirst, often without food, in cold and exposure” (2 Corinthians 11:23-27).

As I go through the ups and downs, many times experiencing the CRPS pain skyrocket to an 8 on a scale of one to ten, I continually look to one of my life verses: “…I will rejoice, for I know that through your prayers and the help of the Spirit of Jesus Christ this will turn out for my deliverance, as it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body , whether by life or by death.  For to me to live is Christ and to die is gain” (Philippians 1:18-21).  As I said in my first blog post , even if you don’t have a painful chronic condition like me, join me in my goal!

Matt Hammitt has another song called Let It Bring You Praise, and it’s exactly my prayer.

Update: On Monday, I had my blood drawn in my right arm—two big tubes of blood and one little one!  It went well.  IVs are definitely worse.  And praise God, I didn’t get a CRPS flare-up in my right arm!  I just have a big bruise at the site from the EDS because my blood vessels are very fragile.  Anyway, still haven’t heard from my dr. regarding the lab work…hopefully soon, but as the saying goes, “No news is good news!”  I’m now taking duloxetine for the pain, and it’s giving me relief already even tho’ I’m not at a therapeutic dose yet.  Still on the waiting list to see Dr. Kern at the pain center for biofeedback.  He’s booked up till June 15th!!  Physical therapy’s going great.  It’s been a long process, but I can now lift my right arm sideways about 145 degrees as opposed to 90 degrees when I first got the varicella vaccine back in March!

By Kerissa Lee April 16, 2026
Hi, friends, I just wanted to write an update on what’s happened since my last post. Sadly, the 2 different tube changes haven’t helped, and there’s still so much leaking around the tube. 🙁 The abdominal pain was decreasing each day, but for some reason, it has ramped up again and has been steadily getting worse the last several days. The pain is sharp and throbbing—it also hurts to use my abdominal muscles. I saw my primary care dr. this past Friday, and he ordered an urgent CT scan. I had that done this past Monday, and the scan shows that the balloon on the tube is lodged in my abdominal wall (it’s called buried bumper syndrome). 😥 So painful, but I’m thankful for answers! I actually had this issue many years ago, and usually, changing the tube size helps. But we’ve already tried 2 different tube sizes in March which hasn’t helped. I don’t know if the tract got damaged or what.. My PCP messaged the surgery team twice now, but they’re not responding still. Ever since my general surgeon left OHSU 2ish years ago to practice in New Orleans, it hasn’t been a good transfer to a different team. 😢 In addition, the CT scan also revealed that I have ground glass opacities in my left lung, so I have to go through work-up for that as well to figure out the cause.. Aside from these latest issues, I’m praising God that my mitochondrial disease has been stable still!! So thankful for God’s grace and faithfulness. The day I got my CT results, I read this excerpt below from one of Joni Eareckson Tada’s daily devotionals, and it was like the Lord was speaking right to my heart. I hope it’s an encouragement to you. ❤️ “Present pain and afflictions tend to heighten future joy. When is peace the sweetest? Right after the conflict. When does a cold drink taste best? When you’ve become very thirsty. When do you appreciate rest the most? After hours of hard labor. When is joyful company most pleasant? After enduring long days of loneliness. The truth is, our recollection of past sufferings may one day enhance the bliss of heaven. Eternity with the Lord will be so much more heavenly to those of us whose faith has been tested, battered, and tried, time and again.” -Joni Eareckson Tada One more thing.. I’d really love prayers for my uncle (my dad’s older brother). He’s been very sick in the neuro ICU with serious issues. First pneumonia, then bacteria in his spine which later broke his back. He had a major spinal surgery but still can’t move his legs. 🥺 On top of that, his kidneys started failing, so he had to be placed on continuous dialysis. He also had to be put on a ventilator due to fluid in his lungs. Then, he still couldn’t breathe well, so he had to get a tracheostomy tube placed in his neck. 🥺 Despite all this, he and his family are so strong and trusting the Lord which is a huge testimony to all of us and to the ICU. Could you please pray for peace, strength, and healing over his body? I know he and his family would be so grateful for your prayers. 💙 P.S. I wish I could show you my foster nephew’s sweet face in this photo from Easter Sunday! He is now 9 months old—the most precious and adorable little boy!! Our lives are so much sweeter with him in it. 🥹
By Kerissa Lee March 31, 2026
Dear Dr. Phillips, There aren’t enough words to express how thankful I am to have had such an amazing GI doctor like you these past 13 years. I think of all the hard challenges that have happened starting at age 20 and beyond: experiencing GI dysmotility, not being able to eat “normal” foods without terrible abdominal pain/distention, only tolerating soft consistencies like baby food pouches (which was not fun as a 22 year old!), needing an NJ tube placed down my nose, having a jejunostomy tube surgically placed, then no longer tolerating tube feeds, dropping down to 77 pounds, getting admitted the day after Christmas to start TPN, being surprised by the extremely high copper levels on my liver biopsy and starting treatment for that, going through septic shock which caused ischemic hepatitis (remember when my liver function test was 1674!), having sepsis 5 other times from multiple central lines and ports, requiring urgent surgery to remove my gallbladder, needing D10 added to my IV fluids for numerous mitochondrial crashes, and much more. Through all the highs and lows, you were there for me, and I truly feel like I hit the “doctor jackpot” to have had a GI specialist as caring, compassionate, knowledgeable, and kind as you. I shed quite a few tears to my chagrin at my last in-person appointment with you in February 2026, and I still do as I reminisce and write this letter. But, they aren’t just tears of sadness. They are also tears of gratitude—I know this journey would have been much more difficult if I didn’t have your wonderful care and support all these years. I’m so happy that I was able to get off of TPN back then after 5 years of being on it. Not only that, but I’m so thankful that I can eat orally to my heart’s content without pain and abdominal distention. I know that’s in part due to you, so thank you. From the bottom of my heart, thank you so very much for caring for me. I will never forget you, and I wish you all the best as you start your retirement. :’) With immense gratitude, Kerissa
By Kerissa Lee March 17, 2026
"God is always doing more than we know, working toward a good we will one day rejoice in." -Lysa Terkeurst