Prayer requests

Kerissa • February 2, 2021

Hi friends,

I would really appreciate your prayers.

It’s been a hard past several weeks.  I’ve been experiencing severe leg pain every day (especially at night….I’m not able to fall asleep until after 3 AM every night).  We thought it was due to my ferritin being low, so my GI specialist ordered 2 IV iron infusions.

But then, after looking at my weekly lab work, we saw that my blood calcium level has been continuing to drop (this is called hypocalcemia).  Hypocalcemia causes “neuromuscular irritability,” so my legs have been aching horribly.😔 We’re not sure if this is due to progression of the hypoparathyroidism that I have (which is caused by my mitochondrial disease and Wilson’s Disease), so I have to get more blood work done.

I’m already on high doses of calcium every day, so my endocrinologist is having me increase a medication that I take called Calcitriol.  She’s also ordering an IV calcium infusion.  But it has to get authorized by my insurance first.  Could you pray that my insurance will authorize it quickly?  It’s so hard to wait because of how bad the pain is. :’(

On top of this, I’ve also been experiencing really bad pain in both of my wrists and the thumb-side of my hands.  I haven’t been able to hand letter, and I really miss it (the lettering pieces you may have seen me post are all older ones that I’ve saved). :’(  My hand therapist is having me wear these hand splints that she made for me.  She thinks she knows what’s going on, but I do see the orthopedic hand surgeon on February 9th to get an official diagnosis.  As you can see, it’s been really hard to have all this new pain on top of my regular chronic pain (small fiber neuropathy, headaches/migraines, back muscle spasms, etc.).

I read this verse the other day from Psalm 37:5.  It says, “Commit your way to the Lord; trust in him, and he will act.”  Just 2 verses later, it also says to “be still before the Lord and wait patiently for him.”

God tells us He WILL act for those who wait for Him (Isaiah 64:4).  I need to wait patiently, but it’s easier said than done—and it’s hard.  So very hard to deal with one thing after another.  I know I used the word “hard” so many times.  That’s because it is….but I remember all that’s happening is another test of faith.  And I want to persevere and remain “steadfast under trial” (James 1:12).  As I wait for things to start looking up, God will continue to sustain me minute by minute.❤ Thank you so much for praying for me.  I will definitely update when we know more!

By Kerissa Lee January 21, 2025
Hi, friends, First off, the piece of art above was hand lettered by me last year before all “this” happened. I’m sad to say that I only have 3 or 4 pieces left to share until I run out.. 😢 I went to see my neuromuscular neurologist in Seattle on January 8th. My neck weakness continues to progress which has been so scary. He said I need to get a neck MRI and some specific blood tests to check for polymyositis. If it is normal, though, his opinion is that this is mitochondrial disease progression. 😔 I haven’t seen my mitochondrial specialist in San Diego in more than 3 years (I started seeing him in 2014!), so I’m sadly no longer considered his patient. The neurologist sent a new referral to him, but I’m not sure if it will be accepted.. He’s almost 80 years old (one of the pioneers of “mitochondrial medicine”). And I don’t know if he’s cutting back on “new” patients.. Even if he did accept my case again, I’m currently not physically well enough to fly down from Oregon.. 😞 My quality of life continues to worsen ever since this unusual neck weakness started this past October. I know I’ve said this before, but I truly miss doing all of my favorite things (like hand lettering art) or even simple tasks (setting up my own IV infusions, vacuuming, washing hair, etc.). 🥺 Before October, I was even starting to drive to physical therapy or the grocery store. Yes, I’m 32 and still don’t have my driver’s license due to being preoccupied fighting mitochondrial disease for almost 15 years now. I never shared the exciting news that I was able to get my driver’s permit over 2 years ago, and it was so fun to drive myself to appointments close to home. Now, I can’t do any of the above which has been difficult to process. I shed tears every now and then just thinking about all that has changed. 😢 I’m having to go to bed around 6:30 PM to lie down and rest my neck. But I’m so uncomfortable from the pain, and I don’t fall asleep until after 3 AM every night. So my pain dr. referred me to palliative care. 😢I know it’s not hospice, but I’m still sad we’re at the point where I even need palliative care. Unfortunately, they’re most likely going to deny the referral (if they haven’t already) because we were told they only see cancer or heart transplant patients. I even checked if there’s palliative outside of OHSU, but they, too, see only oncology. It’s so hard that cancer gets a lot of funding, research, and support, and those with rare diseases are left “on their own.” It’s isolating and lonely. 🥺 I saw my PCP again, and he is just the best and full of compassion. ❤️ He placed the neck MRI as urgent and also ordered more labs to keep pursuing answers since all this is such an atypical picture if it was mito progression.. In case palliative turns my case down, my dr. told me that the internal medicine clinic has a complex and chronic pain management clinic (different from the pain center that I’ve been going to since 2011). He referred me to them to try and help me get more comfortable. I have a wonderful team of doctors and an amazing naturopath, but I’m even going to see a functional medicine doctor for the first time on the 23rd. Praying he could maybe have some additional insight on everything and will offer some fresh ideas for treatment as well.. I also have an appointment with the metabolic geneticist on the 28th.. I’ve read through the Bible more than once, but it’s amazing how the Lord points us to specific verses at just the right time. I don’t know about you, but sometimes I think, “I don’t remember reading this before!” Paul David Tripp’s newest devotional Everyday Gospel has been so very encouraging. He shared 2 verses from the book of Genesis where Jacob said that God “answers me in the day of my distress and has been with me wherever I have gone” (35:3). Several chapters later, Jacob also said that God “has been my shepherd all my life long to this day” (48:15). When I read that, I felt such peace. God spoke to my heart to remind me that He is with me and for me….in every circumstance no matter how hard. ❤️ Could you please pray that I can have the MRI completed this month and not have to wait many weeks? Pray that all of my doctors will have wisdom as my case is so complex. Lastly, could you pray that I will persevere and keep walking by faith? I feel so weary, not only physically but also mentally and spiritually. 😥 Thank you so much for praying for me all these years. ❤️
By Kerissa Lee December 13, 2024
"He alone is my rock and my salvation, my fortress; I shall not be greatly shaken." Psalm 62:2
By Kerissa Lee November 9, 2024
“Be still, and know that I am God.” -Psalm 46:10 
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