2013

It’s so good to be back in Oregon!! 🙂  Missed my siblings so much! Last week alone, I had 8 appointments at CCHMC—that was crazy busy!  But these past weeks were incredible, and I’m again so amazed at how thorough and caring the doctors/nurses are at Cincinnati Children’s Hospital Medical Center!  I’m so blessed to […]

Hi, everyone! This morning, I saw the mitochondrial disease specialist and genetic counselor in the Human Genetics department at Cincinnati Children’s.  We went over my history/new symptoms and discussed my nuclear mitochondrial exome sequencing results.   For those new to my blog, I had my nuclear mitochondrial genes sequenced through a lab called Courtagen Diagnostics […]

Yesterday: Saw cardiology and orthopedics for my POTS disorder and back pain.  Will update some other day about how these appointments went. 🙂 Today: It snowed about 4 more inches this morning here in Cincinnati!  Sooo fun and beautiful. Had an abdomen x-ray to follow up on this GI test I had this past Thursday […]

Hello all! It’s snowing here in cincinnati!! 🙂  I’m sorry I’ve been slacking on my blog.  Blogger still isn’t letting me upload pictures.. Today I had no appointments…because of the snow, we’ve just been staying indoors at the RMH. 🙂  I got discharged from the hospital yesterday afternoon—so thankful.  All the GI manometry testing made […]

Hi guys! So sorry I didn’t blog yesterday.  It was a super busy day, getting my first pulmonary function test to check lung function/strength, seeing the sleep docs, going through the whole admitting process, and a whole lot more.  I wanted to post pics, but Blogger is giving me trouble once again…so pictures may never […]

Hellooooo from Ohio!! 🙂  Thank you so much for your prayers!  I so appreciate all of you!  I’m afraid this will have to be quick since I have a long day tomorrow. My parents and I made it to Cincinnati safely. 🙂  My mom and I were blessed to fly first class (thanks to mercy […]

Hey friends! Just an update for you—this week has been crazy busy!!  I have 5 appointments this week alone!  Hopefully things will get less hectic next year. 😉 Monday, November 18th—  I had to go through a most unpleasant GI test that involved water-soluble contrast and fluoroscopy.  I’m traumatized for life! 😛  And I hope […]

Wonderful news—my Cincinnati trip this December is a go!!  Thanks be to God, the GI motility disorders team has fit me in on their schedule!  I’m SO happy. =)  Originally, this was thought to be impossible because they are booked out till mid-January and they could only see me if my GI dr. here did […]