Yesterday- Day 2…

Kerissa • December 4, 2013

Hi guys!

So sorry I didn’t blog yesterday.  It was a super busy day, getting my first pulmonary function test to check lung function/strength, seeing the sleep docs, going through the whole admitting process, and a whole lot more.  I wanted to post pics, but Blogger is giving me trouble once again…so pictures may never come until I get home..lol.

The NG tube in my nose finally got removed this morning!  *sigh of relief*  It was so miserable with it in—every time I swallowed or spoke, the tube moved around way too much and made my throat really sore.  The nurse had to tape the tube down three times!

At 3:30 today, I’ll be taken to the OR for the extensive procedures.  You want to hear a cool fact?  Because I’m prone to malignant hyperthermia, the anesthesiologists in the OR will use this machine and filter out the “bad” general anesthetics that are known to cause reactions to MH. Very fascinating!

In other news, the Ronald McDonald House across the street from CCHMC called and said they have a room for us!  It’s so nice that I’m still of age to stay there even though I’m not a teen anymore.. Now we get to stay there until we leave to return home! Thank you, Lord, for your many blessings!

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23