I don’t really want to go into the gritty details, but this has been a hard week physically. 🙁 Long story short, my mitochondrial disease appears to be progressing..
Not knowing what will happen next symptom-wise always keeps me on the edge of my seat. But, I am encouraged that, when all else fails, Christ remains faithful. Thank you, Lord, for your unending grace!
Up until a couple months ago, traveling back to Cincinnati, Ohio wasn’t in the “plan.” But here I am, planning another trip back. This December. My geneticist has referred me to Genetics again (but this time to see their mitochondrial specialist), Pulmonary Medicine, and Gastroenterology (Motility Disorders Program). I’ve also been referred to Cardiology and am hoping to get appointments with Spine Medicine and Neuromuscular as well. This will be the whole deal.. 😉
Hopefully after I see this mito specialist, I can begin “treatment,” including the “mito cocktail.” For my TRAP1 gene mutation, Dr. Boles through Courtagen said that aggressive antioxidant therapy can be helpful, and I look forward to starting that.
Even though this Ohio trip is in the works, I still hope to see that mitochondrial specialist in San Diego. But I’m not sure if or when that will be.. Especially since my spinal tap results are still pending. 🙂
Your prayers for wisdom would be appreciated! Pray that I would patiently endure and not be focused on all my symptoms all the time.
love and hugs,