Upcoming Trip…….

Kerissa • Oct 26, 2013

I don’t really want to go into the gritty details, but this has been a hard week physically.🙁  Long story short, my mitochondrial disease appears to be progressing..
 
Not knowing what will happen next symptom-wise always keeps me on the edge of my seat.  But, I am encouraged that, when all else fails, Christ remains faithful .  Thank you, Lord, for your unending grace!

Up until a couple months ago, traveling back to Cincinnati, Ohio wasn’t in the “plan.”  But here I am, planning another trip back.  This December.  My geneticist has referred me to Genetics again (but this time to see their mitochondrial specialist), Pulmonary Medicine, and Gastroenterology (Motility Disorders Program).  I’ve also been referred to Cardiology and am hoping to get appointments with Spine Medicine and Neuromuscular as well.  This will be the whole deal..😉

Hopefully after I see this mito specialist, I can begin “treatment,” including the “ mito cocktail.”  For my TRAP1 gene mutation, Dr. Boles through Courtagen said that aggressive antioxidant therapy can be helpful, and I look forward to starting that.

Even though this Ohio trip is in the works, I still hope to see that mitochondrial specialist in San Diego.  But I’m not sure if or when that will be..  Especially since my spinal tap results are still pending.🙂

Your prayers for wisdom would be appreciated!  Pray that I would patiently endure and not be focused on all my symptoms all the time.

love and hugs,

By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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