Another year is just about over! As I look back on these past 12 months….2013 was filled with unexpected events and a lot of “firsts” (and “seconds”). You could say this is my belated Christmas letter.. I’m sorry if this is a bit long….a lot happened this year. lol
Met this precious little guy at the RMH! He was getting ready to have a bone marrow transplant! I know I shared this pic before, but it’s one of my favorites! |
All of this was for the GI manometry testing! |
And this is what it looked like on the computer screen. |
I also had a lot of outpatient tests/appointments with cardiology, orthopaedics, pulmonology, genetics, and neurology. Based on my genetic results, the doctors also think that I have a rare genetic neuromuscular disorder called Congenital Myasthenic Syndrome. This is on top of the mitochondrial disease.. They already started me on a cholinesterase inhibitor drug to slow the progression.
This has been a tough year for all of us, but your prayers/support and the Lord’s grace has sustained us through it all!
I don’t know what 2014 will bring….maybe it will be an easier year….or maybe there will be new trials and tests. But this I know 100%: my Lord and Savior is always always good, sovereign, steadfast, and faithful!
“Beloved, do not be surprised at the fiery trial when it comes upon you to test you, as though something strange were happening to you. But rejoice insofar as you share Christ’s sufferings, that you may also rejoice and be glad when his glory is revealed.”
I Peter 4:12-13