THIS IS MY STORY . . .

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Apr 26, 2022

Dear friends,

I’d really appreciate your prayers. The past few weeks, a bunch of different things have happened.

I wrote in the past how I have an eye muscle disorder called Progressive External Ophthalmoplegia which is from my mitochondrial dna depletion syndrome. In simple terms, it basically means eye muscle paralysis. For several years now, I slowly lost the movement of being able to move my eyeballs to look to the left, then up, then down.. But I was always able to look to the right.. Well, up until a few weeks ago. I suddenly noticed that I couldn’t look to the right well anymore which made me really sad. 😢 Now I have to turn my whole head to look different directions. I saw my neuro-ophthalmologist in December, and everything was stable then. So this happening suddenly was hard to realize… I see her again next month for her to take a look.

Around the same time, something started happening with the hearing in my right ear. It’s hard to explain, but it’s like there’s a “short circuit.” There’s an almost constant buzzing sound, and that keeps me up at night. 🙁 I have a full evaluation with the neuro-otology (ENT) clinic at OHSU at the end of May. Maybe this is just a benign thing, but regardless, it’s still something I’ve had to adjust to.. 😔

On top of that, the past few days, I’ve been feeling crummy with tachycardia, elevated liver enzymes, nystagmus, and a terrible headache every day. 😭 Not sure what’s going on, but I’d appreciate prayer that this will soon blow over, especially because my whole family and I are heading to Sunriver for several days at the end of next week. I don’t want this to be the start of a brewing “mito crash.” 😞

I love you all and am so grateful for your prayers. ❤️ I thank God for his comforting promises like the verse I lettered above. He is faithful.

Post written byKerissa

Check out my previous posts below

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Seattle neurology appointment ...
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Medical Update July 2022 ...
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February 2022 Update ...

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