I haven’t updated in so long, but I could use your prayers. ❤️ I shared this on social media last week but will share here for those who don’t know. Last Tuesday, I was up all night with horrible, cramping abdominal pain, and I couldn’t fall asleep until after 6 AM. 🙁
I had an appointment with my GI dr. today, and I told him about what happened. Given my GI dysmotility, he said it could have been a partial bowel obstruction…. We also discussed something called “intussusception” which is when the GI tract basically “telescopes” into itself, but that would be last on his list and the only way to diagnose that would be to get a CT scan during the episode.
Anyways, I haven’t been feeling my normal still, and it seems like I’m going through a “mito crash” which is a decompensation episode that can happen with mitochondrial disease. My eyes are really droopy, I’m exhausted, weak, having bad pain, and not tolerating food as well….my stomach will get really distended which makes me look 6 months pregnant. 😞 A few years ago, I had a mito crash that landed me in the hospital. But, obviously, I don’t want to go there, so my GI dr. is going to talk with my primary care dr. to see about getting some IV D10 (dextrose) and infusing it through my central line for a few days or so. D10 can be helpful for mito crashes.
So that’s where things stand currently. It’s been hard, but I’m trying to wait on the Lord. I just feel so crappy. 😔
Thank you all for your love and support. I know this too shall pass! I lettered the quote above when I saw it on Instagram, and it’s so encouraging. ❤️