Pain eval: Day 5

Kerissa • Apr 18, 2013

My day at the pain “center” went great!  Super long, though, and now I’m dealing with nystagmus again cuz I had to wake up early…but overall, the evaluations were really thorough, and they were able to give second opinions and recommendations.  The dr., physical therapist, and even pain psychologist were all real down to earth!🙂

Dr. S, the physical therapist, and me🙂

The dr. wants me to go to a 3 week inpatient pain rehab program because I need to get better function-wise and outpatient physical therapy isn’t enough.  But…the program is in Cleveland, Ohio!!!!! :  So we’re gonna research things more and possibly look into different ones, although the only other high-reputation programs are in Chicago, Florida, John Hopkins, or at the Mayo Clinic in Minnesota.  Of course, going to something like this won’t be for a while anyways as I need to get a little better first.

I got 5 tubes of blood drawn this afternoon!  The genetic results (which will look at my mitochondria DNA genome sequence for defects, etc.) can take up to 8 weeks to come back..  So more waiting to do.. :  I also drew blood to check my lactic acid—the test results came back positive which is another sign of Mitochondrial Disease.  On Friday, I’ll be seeing my Genetics dr. again to discuss the plan the doctors formed.🙂

In the meantime, we are planning on going to the Cincinnati Zoo tomorrow since that will be the only day with no appointments!  Yay!🙂  So excited!

By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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