P is for Perspective

Kerissa • Sep 10, 2013

Hi, everyone!  It’s good to be back to the blogging world!

I wanted to blog the first week of September like I had mentioned, but that week was super busy, getting back into the gist of things after returning home from the beach with my family.  We had a great time together, but I’m glad to be home because I get more rest and sleep than when I’m on vacation!😉  Not much rest at the beach meant nystagmus and bad headaches..

Last week, I saw the sleep medicine doctors and had my first sleep study.  Normally, the doctors have the techs wake the patients up at 6 in the morning, but Dr. H wrote in the order to let me sleep till noon the next day.  I was glad!  The study was extremely interesting, and the techs taught me a lot about sleep disorders.  But I really hope I don’t have to repeat the experience. :o)  I should get results within two weeks!

This past Thursday, I also saw my neurologist and had my 4th EMG/NCV study.  The results were abnormal—namely, my right tibial motor nerve shows prolonged distal onset latency and increased insertional activity.  Not sure if this is mitochondrial-related…

The spinal tap Dr. G’s ordering is to check 5-methylhydrofolate levels and lactate.  She’s gonna be in touch with my pain dr. this week to see if he would like to do the procedure.

Just 2 more weeks and the mitochondrial exome sequencing results will be completed!  Yay!  All this waiting for results is exhausting.😉

I’ve been following a blog and facebook page of a mom who has 4 little daughters—her two youngest are battling an extremely rare disease that doctors think is an unknown mitochondrial disorder.  My health issues pale in comparison to theirs!

Ever since they were born, Addison and Audrina have had to deal with: S evere Dysmotility, Reflux, Failure to Thrive, Vomiting, Hypotonia, Anemia, Jaundice, Chronic Fatigue and pain, along with frequent infections , Central Apnea, Hypoventilation Syndrome, Supraventricular Tachycardia, Cardiac Dysfunction, Metabolic Acidosis, Moderate-to-Severe Dysphagia, Abnormal Hemoglobin Variant, Kidney Dysfunction, and Dysautonomia.  They can’t even eat normal food.🙁  Please keep them in your prayers.

This amazing family is such an example to me.  Their strong faith in the Lord encourages me every day.

So in closing, I just want to say, “Perspective is a powerful thing.”  It definitely changes my “vision,” helps me look at life differently, and causes me to be thankful.🙂

By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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