May 27, 2014

Can you believe we leave for San Diego in less than 3 weeks!?!  Wow! 🙂

I’m sorry it’s been so long since I updated.  Haven’t been feeling great and am dealing with really bad hay fever on top of everything else (and the funny thing is, I’m rarely outside!).  May 16th I had a nasojejunal feeding tube inserted.  The jejunum is part of the small intestine, and the small intestine alone is about 20 feet long!  Talk about amazing! 🙂  My GI dr. had difficulty placing the tube past my stomach, and it took 3 tries + forceps.  I also had a rough time in the PACU (post-anesthesia care unit)—my temperature dropped to 94 degrees, and I experienced heart/lung issues which required IV heart medication and a breathing treatment.  With mito, nothing is simple..

On top of all that, the bottom of the feeding tube got kinked that night, and I couldn’t even start feeds.  I had to go back into the hospital two days later and get that fixed.  It’s now working great! 🙂  It’s actually fun to set up the feeding pump every day and use a syringe to flush the tube before/after feeds.  Each night, I receive up to about 1000 extra calories (my GI dr. gave me a diagnosis of Protein Calorie Malnutrition).

I’m slowly getting used to the tube down my throat but am still experiencing painful “charlie horses” in my tongue which aren’t fun at all.  But I only need to have this NJ tube for 5 more weeks!  Counting down the days! 😉

Thank you so much, Auntie Karen and Kelsey, for putting together this beautiful “scrapbook” full of cards and notes!  What a treasure this will be throughout the years!  I am so blessed to have you in my life. 🙂  And thank you to everyone for sending words of encouragement through this book!  It means a lot to me.  I’m thankful to the Lord for all the support He’s placed around me!
Post written byKerissa

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