Only 19 more days to go!

Kerissa • May 27, 2014

Can you believe we leave for San Diego in less than 3 weeks!?!  Wow!🙂

I’m sorry it’s been so long since I updated.  Haven’t been feeling great and am dealing with really bad hay fever on top of everything else (and the funny thing is, I’m rarely outside!).  May 16th I had a nasojejunal feeding tube inserted.  The jejunum is part of the small intestine, and the small intestine alone is about 20 feet long!  Talk about amazing!🙂  My GI dr. had difficulty placing the tube past my stomach, and it took 3 tries + forceps.  I also had a rough time in the PACU (post-anesthesia care unit)—my temperature dropped to 94 degrees, and I experienced heart/lung issues which required IV heart medication and a breathing treatment.  With mito, nothing is simple..

On top of all that, the bottom of the feeding tube got kinked that night, and I couldn’t even start feeds.  I had to go back into the hospital two days later and get that fixed.  It’s now working great!🙂  It’s actually fun to set up the feeding pump every day and use a syringe to flush the tube before/after feeds.  Each night, I receive up to about 1000 extra calories (my GI dr. gave me a diagnosis of Protein Calorie Malnutrition).

I’m slowly getting used to the tube down my throat but am still experiencing painful “charlie horses” in my tongue which aren’t fun at all.  But I only need to have this NJ tube for 5 more weeks!  Counting down the days!😉

Thank you so much, Auntie Karen and Kelsey, for putting together this beautiful “scrapbook” full of cards and notes!  What a treasure this will be throughout the years!  I am so blessed to have you in my life.🙂  And thank you to everyone for sending words of encouragement through this book!  It means a lot to me.  I’m thankful to the Lord for all the support He’s placed around me!
By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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