MRA results and more!

Kerissa • Mar 13, 2014
This is me in vascular form.😉  That blue arrow I drew is pointing to my left vertebral artery—see how it’s kind of coiled and looped?  That’s called tortuosity which is a new med term that I learned.😉  People with tortuosity are prone to aneurysms/strokes, and my neurologist said it can be seen in patients with Ehlers-Danlos Syndrome.  My cervical spine instability is putting stress on my arteries….so my neurologist wasn’t very surprised by this new finding.  She said it’s just something to keep an eye on.

I’ve also been dealing with decreased appetite and weight loss again.🙁  I’ve been doing all that my GI dr. told me to do, but it’s not helping.  So he referred me to their clinic’s nutrition therapist, and that appointment’s next month.  We’ll see if she has any other insight to offer..

After PT and OT today, my mom and I were able to ride the tram up to the OHSU hospital again because I had to drop off my CPAP sd card at the sleep clinic front desk (my sleep dr. wants to take a look at the data to see if he needs to increase the CPAP pressure because I’ve been experiencing breathing problems due to tired respiratory muscles).  OHSU gives free passes to patients!😉  The ride was especially fun today because the weather was sunny and beautiful!

For those who don’t live in Portland, this is what it looks like!  Took this while riding the tram.🙂

😛
By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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