More tests..

Kerissa • Jul 03, 2013

Yesterday:

My first saline infusion went great!  I don’t think I’ve noticed any benefit yet, but I guess it is a little early to tell..🙂

this is my infusion chair.😉


Today:

My tube of saliva for the exome sequencing got sent off to Woburn, Massachusetts!!  Here’s to counting down 6+ weeks once again..  This DNA test costs $16,045…!  It’s moments like these when I’m VERY thankful for medical insurance.🙂

I saw my neuro-ophthalmologist this morning, and she did another full exam.  Dr. F gave a few reasons why I can’t move my left eye very well.

1. I either have weakness of the eye muscles due to a mitochondrial disorder…


OR

it’s something entirely different like…



2. an enlarged cranial nerve

3. inflamed eye muscles

So she’s ordering 2 MRIs: a brain MRI (it’s been 7 months since my last one) and an MRI specifically for my eyes called an orbit study.  That will be interesting!

This morning, my geneticist in Cincinnati sent a referral for me to see a mitochondrial specialist in San Diego!!  It’s sad there are none in Oregon..  It will still probably be months before I can get in to see this dr., but I’m excited to finally see an expert who understands mitochondrial disorders.

Enjoy the sunshine!🙂  To end, here’s a quote that I love.  I just read it today, too!

  No man can estimate what is really happening at the present. All we do know, and that to a large extent by direct experience, is that evil labors with vast power and perpetual success- in vain: preparing always only the soil for unexpected good to sprout in . ~ J. R. R. Tolkien
By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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