Yesterday:
My first saline infusion went great! I don’t think I’ve noticed any benefit yet, but I guess it is a little early to tell.. 🙂
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| this is my infusion chair. 😉 |
Today:
My tube of saliva for the exome sequencing got sent off to Woburn, Massachusetts!! Here’s to counting down 6+ weeks once again.. This DNA test costs $16,045…! It’s moments like these when I’m VERY thankful for medical insurance. 🙂
I saw my neuro-ophthalmologist this morning, and she did another full exam. Dr. F gave a few reasons why I can’t move my left eye very well.
1. I either have weakness of the eye muscles due to a mitochondrial disorder…
This morning, my geneticist in Cincinnati sent a referral for me to see a mitochondrial specialist in San Diego!! It’s sad there are none in Oregon.. It will still probably be months before I can get in to see this dr., but I’m excited to finally see an expert who understands mitochondrial disorders.
Enjoy the sunshine! 🙂 To end, here’s a quote that I love. I just read it today, too!
Post written byKerissa
With the saline infusions, I don't know how warm your summer has been, but I've been struggling a bit even with the infusion the past two weeks with the hot weather.
Praying for you girl!!!
Yeah our summer has been super hot! We just went through a heat wave. 🙂 But thankfully, I think it's starting to cool down.. Thank you so much for your prayers, Alana!! Love you! <3