More test results

Kerissa • Jun 24, 2015

Hey guys,

Last week, I received my sleep study and EEG results!

Compared to my sleep study in 2013, things have worsened sleep apnea-wise.  The results show that I stop breathing an average of 17 times per hour.  No wonder I’m so tired. lol  The longest length of time that I didn’t breathe well was 50.6 seconds.  The sleep data also shows that my heart rate shoots up to 147 beats per minute multiple times throughout the night.  We’re not sure what causes that—I do see Cardiology next Wednesday.

My sleep dr. wants me to go back to the sleep lab.  He put in an order for CPAP settings to be calibrated and titrated to see if I can tolerate it better.  If not, he mentioned again that we may need to switch to BiPAP.  This 4th sleep study is scheduled for next Thursday, July 2nd.

My EEG results show something called brain wave “slowing.”  This is abnormal and can be caused by numerous things.  I hope to ask my mito specialist what this means in relation to the mitochondrial disease.  My neurologist said this may be partly why I experience cognitive issues.

I’ll be admitted again sometime in the future to get an overnight EEG completed.

Next month alone, I have a total of 14 appointments.🙁  It will be busy!!  My parents and I also leave for San Diego next Saturday for my mitochondrial appt. on July 7th.

Lastly, we received my blood copper level back again.  It dropped even more which is not good.🙁  My GI dr. is now having 6 times the normal amount of I.V. copper added to my TPN….that’s a lot!!

Thank you for checking in!🙂

By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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