|This is a j-tube pad around my mic-key button. Many people sew these—they’re super cute and comfy! And it keeps the granulation tissue/leakage at bay!|
|hooked up to tube feeds 🙂|
|And this is my new enteralite infinity pump!|
Yesterday, I had a lidocaine and magnesium infusion for the CRPS pain. We weren’t expecting any surprises because I’ve had both before, but you know me… 😉 I have to keep things exciting! Long story short, things went terribly and involved very high heart rates, slurred speech (that was scary), head-throbbing, and a feeling of passing out twice. The pain team had to quickly give me a bag of IV fluids and stop all the medication drips. So I didn’t really receive a good infusion… :/
If my insurance approves it, my pain dr. will be starting me on another pain medication.
In addition to all this, I’ve been dealing with a huge and painful mouth ulcer. I haven’t been able to eat much at all! It’s hard to talk, and this ulcer is my biggest one yet. 🙁 I’ve been getting mouth ulcers regularly for a long time now, so I have to see a dermatologist who specializes in oral mucosal disorders because we’re wondering if something else is going on.
This has been a challenging week, but I continue to press on! To close, I want to share this beautiful quote that I read just today. 🙂
“Suffering is not the absence of goodness, it is not the absence of beauty, but perhaps it can be the place where true beauty can be known” ~ Kara Tippetts (a sister-in-Christ who recently wrote a book about her journey battling stage 4 cancer….she knows all about suffering!)