On Friday, I had my autonomic nervous system testing done. What an interesting experience! I’m constantly amazed at all these types of machines and their different purposes. I should get results this week!
|This part of the test checked how well my sensory system is working. I held this little remote and pushed the “yes” or “no” button when I could or couldn’t feel the vibrations/cold temperatures.|
|This test is called the Quantitative Sudomotor Axon Reflex test. It’s used to assess my small nerve fibers which are linked to the sweat glands.|
|The tech injected this neurotransmitter called Acetylcholine into these “capsules” against my skin. She also stuck all these electrodes on the left side of my body. The stimulation sure stung!|
|Here are all the graphs she had to record!|
|This is the tilt-table test. It’s done to look at how my blood pressure and heart responds to the change of position.|
I got referred to Doernbecher’s Metabolic program, and hopefully I can schedule an appointment this week! The doctors there specialize in metabolic disorders, and they can help diagnose/evaluate patients with mitochondrial diseases.
I had my second occupational therapy appt. today. My therapist is so sweet! Her name is Amy. 🙂 She’s been teaching me how to “pace” and conserve energy. This Wednesday, after my grandma’s memorial service, I have my appt. at the OHSU seating clinic to get measured for my wheelchair. 🙂 A physical therapist named Cinda (who specializes in neuro/muscular disorders) will be helping the wheelchair rep. evaluate and give input on everything. After that, Amy’s going to talk with her and hopefully form a better therapy plan for me.
I’m still waiting for the mtDNA sequencing to be completed. Hopefully soon!