Little by little, we’re moving forward…

Kerissa • Oct 17, 2012

Praise God, I heard back from my pain dr. today!🙂  You haven’t read a new update in a while because I’ve been waiting, waiting, and waiting myself to see what’s next.😉  Okay, soo, my pain dr. sent a referral letter yesterday to a neurologist outside of the OHSU system, and hopefully, I can see her real soon!  She only takes special cases now, and according to my pain doctor, I’m a special case.😉

I’ve been wondering if I have something called Syringomyelia (it’s associated with EDS) because you can get a drooping eyelid, headaches, and leg weakness with that.  My pain dr. did say today that SM is possible, but I’d have to get an MRI.  He doesn’t want to take out my SCS, tho,’ until a neurologist says so.  He does think that “there is a real possibility of an MRI finding pathology that changes treatment.”  I’m glad he thinks so! haha🙂  You’re probably thinking, Why are you glad that he thinks an MRI would show a disease process?  Well, because the previous neurologists I saw weren’t helpful at all and implied that these symptoms I’m experiencing are in my head!!  I had a terrible experience with them.  The attending neurologist that I saw last month in the hospital even had a resident psychiatrist with her. x[

So I’m soo grateful that my pain dr. understands and even told me he won’t leave me “out in the wilderness.”🙂

Physical therapy has been tough.  My left leg still isn’t strong, and whenever I do a certain exercise, my right leg goes out of my hip socket or something like that (EDS problems once again..).  My therapist told me to stop that exercise, and we’ll discuss this dilemma tomorrow when I see him.

By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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