“I want my life to be only Christ in me…”

Kerissa • Apr 29, 2016

Hello friends,

Last week, I saw my general surgeon who changed my jejunostomy feeding tube to a new one.  The replacement was so painful, and it’s done while you’re awake!  Basically, the doctors pull the old tube out of the stoma (hole) in my small intestine and stuff a new one in.😉 Glad that’s over!  My feeding tube is nice and new now.🙂 They didn’t have my tube size in stock, so we decided to try a smaller size….and it’s soo much better!  The raw skin around my tube site is now healing which is a huge blessing!

All the iron labs that my GI specialist ordered came back low…one of them is almost down to zero..  So I have to get 5 weeks of IV iron infusions to correct this iron deficiency anemia.  I have daily headaches, dizziness, and pale skin from being anemic, so I’m looking forward to feeling a little better soon.  It will take a while for my red blood cells to make new ones with the iron, though..

This past Tuesday, I had a monthly follow-up with my GI specialist.  I’m still having painful intestinal spasms, so he ordered an anti-spasmodic medication for me to try.  He’s also having me try this new medical supplement to see if it can help some of my GI symptoms.  They’re capsules with lots of super tiny beads of ultra-purified peppermint oil.🙂

I’m still working on increasing my j-tube feeds, but it’s slow progress.  Anemia on top of mitochondrial disease makes me extremely tired, so the motility in my whole GI tract has been poorly lately.

When I was in the hospital for sepsis last month, I mentioned how the doctors ordered a lumbar spine MRI.  Well, something was found on the scan that wasn’t there before (for those who like the medical jargon, it’s called a spinal nerve root sleeve cyst….), so my pain dr. referred me to an OHSU spine specialist.  More doctors to see…🙁 I hope he can help figure this out as I’ve been experiencing some new and painful symptoms.  The appointment isn’t until May 24th, though.

Soo true.

P.S. I’m loving the new look of my blog.😀 Thank you again so much, Curtis!! <3  Love you!

By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
Share by: