Would appreciate your prayers! I know I’ve said this before, but this journey just gets harder and harder… I often wonder what will happen next, but I’m reminded to take each day as it comes. The Lord is full of grace, and I will lean on Him.
Ever since February, I’ve been dealing with sharp hip pain. My left leg gets stuck and doesn’t move well because of this hip issue. Nothing is helping…not even continuous physical therapy. 🙁 I followed up with my Orthopaedics specialist this morning, and he now thinks I likely have a torn labrum in my hip. 🙁 I have to get a very specialized MRI done (this will be my 19th MRI…) where a doctor in Radiology will inject dye into my hip joint to get a closer/better look at all the ligaments and bones. If there is a labral tear, my doctor said surgery may be needed… But we’ll cross that bridge when it comes.
This hip problem is due to more than one thing—muscle weakness from the mitochondrial disease, loose joints from my connective tissue disorder Ehlers-Danlos Syndrome, etc.
Radiology is very booked out, so the MRI isn’t until June 2nd. 🙁 I hope they have a cancellation! I asked if it could be done at a different MRI facility, but because it’s very specialized, he wants it to be done at OHSU.
After I saw my Orthopaedics doctor this morning, I was squeezed in by my OHSU general surgeon. I had to have yet another “incision and drainage” surgery (my 12th surgery…) near my j-tube site because it’s infected AGAIN. 🙁 They’re not sure what’s going on and why this is happening a 3rd time. It’s always one thing after another. 🙁 They’re wondering if my body never got over the 2nd infection back in February, so I’ve been put on 2 weeks of antibiotics instead of the usual 1 week. After cutting open the abcess, they cultured the area, and we’ll see what bacteria is causing this in a couple of days. I have to pack the wound with gauze again which is soo painful.
This month I have a total of 16 appointments so far…! I think this is my record as I usually only have 11 appointments at the most… On top of that, I also have my regular 4 home care nurse visits this month to get weekly labs drawn and my central line dressing site changed.
So much is being thrown my way, but I will continue to rely on the Lord and draw strength from Him! I will keep trusting Him. He is faithful and good. I’m thankful that I can do all things (and face anything!) through Christ who strengthens me. I won’t give up!