Just an update for you. 🙂 Thank you so much for your faithful prayers! This journey just seems to be getting harder and harder, but I know I have all of you and the Lord on my side. 🙂
My left eye isn’t doing too good. Lately, I’ve been noticing that it can’t look to the left well at all. It feels paralyzed. 🙁 Either that, or my eye muscles got super weak over time.. My neuro-ophthalmologist is booked until the end of August, but she’s squeezing me in on July 2nd to see what’s going on. So thankful that’s in 2 weeks and not 2 months! 🙂
I got my autonomic test results in the mail this past Friday, and the dr. who wrote the report said they’re abnormal. I wrote in my last post that my neurologist said they’re “normal,” but I think what she meant is that I don’t have those autonomic diseases like Pure Autonomic Failure or Multiple System Atrophy.
But, on the other hand, I do have some other problems: during the tilt-table portion of the test, the dr. said my heart rate went all the way up to 175 bpm….! That’s definitely not normal. He also said I have orthostatic hypotension due to hypovolemia.
And, my Quantitative Sensory Function test was an abnormal study as well. I have a large-fiber neuropathy which causes loss of joint position and vibration sense and sensory ataxia.
I recently read this verse from one of my favorite chapters in the Bible: “What then shall we say to these things? If God is for us, who can be against us?” (Romans 8:31). Then, at my little brother’s high school graduation (btw, GREAT job, Curtis!! So proud of you!), we sang this worship song called “Our God.” This is the chorus:
P.P.S. I have my first cardiology appt. this Thursday! I’m looking forward to seeing this dr. because Cincinnati Children’s recommended her and she specializes in POTS.
Have a great week, my friends!