THIS IS MY STORY . . .

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Apr 2, 2015

Hello everyone!

Thanks for stopping by and for your continued prayers. 🙂  I’m so blessed!

Haven’t felt up to blogging in a while because the iron deficiency anemia makes me ever so tired, short of breath, dizzy, and pale.

I’ve been needing to breathe fast as well which makes it hard to use CPAP at night.  I messaged my sleep dr., and he called me back.  He really is the sweetest and so kind! 🙂  He’s the co-medical director at the OHSU sleep program and a Top Doctor.  Can you believe this—he’s booked out 4 months!!  He thinks a lot of new things are going on with me sleep-wise, so he’s having his office double-book to squeeze me in April 22nd.  He wants to order more tests and re-evaluate.  He’s astonished that I have to sleep 16 hours a day. 🙁

I had a good follow-up with my GI dr. last week.  He always spends so much time with me…very thankful for a doctor who cares. 🙂  For the anemia, he is having me receive IV iron infusions once a week for 5 weeks to bring my blood counts back up.  He warned me that the iron looks like motor oil….that’s gonna be interesting. lol 😉  Some patients experience body aches as a side effect, but I hope I tolerate it well.

Still receiving TPN every day for 16 hours, but my GI is having the TPN volume/calories decreased by 20%.  We are going to introduce j-tube feeds again at a very slow rate of 2 teaspoons per hour.  And we’ll be using the elemental (broken-down) tube feeds formula.  Not sure yet how this will go as I still deal with hypoactive abdominal sounds, etc.  But I’m game to try!  I see my GI specialist again to follow up on this in 1 1/2 weeks.

This morning, I had my cardiac MRI.  It’s different—they have to capture the images according to each heart beat, and you wear EKG leads and a respiration belt.  During the scan, I was told to take a deep breath, blow it out, and hold for 10-15 seconds….this cycle repeated over and over again!

Tomorrow I have an orthopaedics follow-up, and Friday is my first IV iron infusion at the hospital.  After that, I’m done for the week!

To close, I wanted to share this with you.  My sweet aunt emailed this to me recently, and the words are so encouraging!  And perfect for this Easter! 🙂

Post written byKerissa

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