Hey friends,
Just a short update! I had appointments with GI and Nutrition this past Tuesday, and it’s not great news—my weight’s still steadily dropping.. So my GI dr. has to put in a nasojejunal feeding tube which will bypass my stomach and go directly into the small intestine. I’m not getting enough nutrition because my stomach isn’t moving food well, and that’s making all my symptoms worse. This NJ tube placement will be done in the OR on May 16th! It’s kind of a big step, but I’m past a medication stand-point and I’m losing weight too fast. When I see the mito specialist June 17th, we’ll see if he thinks I need a permanent feeding tube.
I read this beautiful quote a while back from a small book that one of my friends let me borrow, and I wanted to share it with you. I hope it’s an encouragement to you. 🙂
Post written byKerissa
I actually know some people on feeding tubes and they seem pretty happy with them. It seems by the time doctors are willing to put them in there is a massive quality of life upgrade you get after because of the difference it makes. Good luck.
Thanks! We will see how it goes… 🙂
God bless you, sweet girl!