Just a short update! I had appointments with GI and Nutrition this past Tuesday, and it’s not great news—my weight’s still steadily dropping.. So my GI dr. has to put in a nasojejunal feeding tube which will bypass my stomach and go directly into the small intestine. I’m not getting enough nutrition because my stomach isn’t moving food well, and that’s making all my symptoms worse. This NJ tube placement will be done in the OR on May 16th! It’s kind of a big step, but I’m past a medication stand-point and I’m losing weight too fast. When I see the mito specialist June 17th, we’ll see if he thinks I need a permanent feeding tube.
I read this beautiful quote a while back from a small book that one of my friends let me borrow, and I wanted to share it with you. I hope it’s an encouragement to you. 🙂