THIS IS MY STORY . . .

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Sep 20, 2013

Unfortunately, I’m going to have to postpone Part 3 for now…  Sorry about that, everyone!  Typing a lot for Parts 1 and 2 has really aggravated the CRPS nerve pain.  My right hand has been burning and throbbing a ton lately which makes it painful to do things. 🙁

So instead, I just wanted to share a couple articles about two young girls with mito published this week by The Washington Post and CHLA’s blog. 🙂

http://www.washingtonpost.com/local/education/arlington-5-year-old-raising-awareness-for-rare-mitochondrial-disease/2013/09/18/c09c4a16-2065-11e3-8459-657e0c72fec8_story.html

Dr. Richard Boles and his 10-year old patient Kylee at Children’s Hospital of Los Angeles:
http://www.wetreatkidsbetter.org/2013/09/kylees-story-advocating-for-awareness-of-mitochondrial-disease/

Dr. Boles is the medical director of Courtagen, so he will be interpreting my mitochondrial exome sequencing results!  Very excited about that. 🙂

Post written byKerissa

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