April 15th…a date near or far?

Kerissa • Feb 14, 2013

Well, it’s official!  Or, I guess I should say “half-official.”😉  April 15th is the tentative date for my first appointment at Cincinnati Children’s!  *small sigh*  I am grateful that I can see them sooner than July (we were told at first that the EDS clinic is booked until July, but they have been trying to work things out which has been a challenge for sure), but April 15th is still over 2 months away and I’m not feeling any better.🙁  So my neurologist is gonna try to be in touch with their physician priority line to get me in even sooner, but first I’m waiting to hear the names of the doctors I’ll be seeing as she needs names as well as the phone number.

Updates:

Head: My headaches have still been very bad.  I have to use an ice pack every now and then again since pain meds don’t help.  I’m very thankful for ice. :o)

Eye: My left drooping eyelid is still there, but sometimes people don’t even notice it which I’m very glad about!😉

Neck: I saw my spine dr. a few weeks ago and had flexion/extension x-rays of my cervical spine again.  In addition to anterolisthesis (vertebrae slipping forwards onto each other), I now have retrolisthesis (vertebrae slipping backwards) also.  On another note, my atlanto-axial instability is still mild thankfully, so I don’t have to see him till January.🙂

Shoulders: My right shoulder is still pretty loose and my shoulder blade pops out often, so my physical therapist wants me to see him twice a week now.  My left shoulder is starting to become a problem since it has to work more than my right..

Heart: Lately I’ve been experiencing a lot of chest pain.  I’m not sure if it’s because my heart is always tachycardic (POTS issues) or if something else is going on.  Praying that the EDS clinic will be able to find the answer.

Hip: Since my left leg muscles are weak, they’re not able to hold my hip securely, so I’m now having lots of aching pain/crunching/popping.🙁  It makes walking painful!

Feet: This week the CRPS pain in my feet has unfortunately been increasing, but the lumbar sympathetic block I had on Jan. 30th gave me about 2 weeks of less pain so that’s a praise!🙂

I know I look “normal” on the outside, so I just wanted to give you a little picture of what’s going on inside my body.🙂

Stay tuned for more Cincinnati news!

By Kerissa Lee 23 Jan, 2024
Hi, friends, I had a whole other post ready to go with some good news, but instead, I have an urgent prayer request. I started experiencing sudden onset numbness, tingling, and weakness in my whole left leg, and it’s been so scary. 🥺 It just came on out of the blue. I was doing so well with physical therapy each week (able to walk fast on the treadmill and leg press 40 lbs), and now, I have to limp because my left leg is soo weak. I really want to avoid the ED as much as possible, so I saw one of my doctors today. She’s concerned I’m having a big motor nerve issue. 😭 The plan is to see a physical medicine specialist, have a nerve conduction study, get an urgent MRI done, as well as see my PCP and pain doctor on the 25th and 29th for further evaluation/testing. I know I already said this, but it really has been so scary to lose function so quickly. Can you pray that I will trust the Lord and not worry? It’s been very hard, so I’d really appreciate your prayers and support in the coming weeks. Thank you so much. ❤️
By Kerissa Lee 01 Jan, 2024
"Let us know; let us press on to know the LORD; his going out is sure as the dawn; he will come to us as the showers, as the spring rains that water the earth." Hosea 6:3
By Kerissa Lee 11 Dec, 2023
"This hard place in which you, perhaps, find yourself, is the very place in which God is giving you opportunity to look only to Him."  Elisabeth Elliot
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