Another trip to the ER….this time by ambulance :(
Hey friends,
Please pray for me. It’s a long story, but since Saturday, I’ve been dealing with bad headaches every day and just feeling plain crummy. I thought maybe I had another bladder infection, so my PCP’s office told me to go to urgent care to check Tuesday evening. Well, it turns out I don’t have one, but I think I’d rather have that since it’s treatable! TMI, but I’ll just state the facts: they found I have high ketones in my urine (my liver is forming too many ketone bodies and excreting it in my urine). This is what that means—my GI dr. and the urgent care dr. said my body is basically in a starvation mode and is burning fat (instead of sugar) for energy. Mitochondrial disease, protein-calorie malnutrition, and failure to thrive (all things I’m dealing with) don’t go together.
Yesterday, things went downhill. My weakness got worse, I was so hot from burning so much energy, and the nausea was so bad. My parents had to call 911. I thought I was going to pass out! The paramedics had to use a sling to carry me out and put me on a stretcher. I was taken to OHSU where they gave me a bunch of IV pain/nausea meds and IV fluids with dextrose. In just 2 weeks, I’ve been poked a total of 8 times just for blood draws and IVs.
I’m home now because I started perking up after all that they gave me, but I am still so sleepy and weak.
My GI dr. and the nutritionists recommend that I start using tube feeds 24 hours around the clock, so please pray that things will start looking up and that I’ll feel better. I may have mito, but it won’t have me!
He knows just how I feel.
When you feel there is not anyone,
Who understands your pain,
Just remember all of Jesus’ suffering.
