Happy new year, everyone!! 🙂 I’m sorry I never wrote my usual last-day-of-the-year “reflections” post. I was admitted to the hospital the day after Christmas and got discharged this past Tuesday, so I didn’t quite feel up to blogging.
The jejunostomy tube feeds trial failed on Saturday—I have very slow small intestinal motility and hypoactive abdominal sounds. 🙁 It causes terrible abdominal pain, distention, and nausea. The IV team came by Sunday to place a PICC line (peripherally inserted central catheter) in my upper right arm. And Sunday night, the doctors started TPN (IV nutrition) very slowly to bypass my GI tract.
Once I got home, 3 different TPN nurses from home health came by Tuesday, Wednesday, and Friday to teach me and my mom how to administer and hook up to TPN. They also drew blood work (which my GI specialist wants completed weekly) to monitor all my electrolytes, triglycerides, etc. I also got my PICC line dressing changed twice—a nurse will be coming once a week to do this as well.
The CRPS has been flaring up a ton in my right arm from all the trauma. 🙁 Dressing changes are so painful with all the tape removal, etc! So my pain dr. will be squeezing me in soon to try and figure out what to do about this. I can’t use my arm well, and the slightest touch causes severe nerve pain. 🙁
TPN initiation has been a big step. I see my GI specialist this Monday to go over everything and discuss continued tube feeds trials as it’s not good to stay on TPN long-term. And for the first time ever, the hospitalist gave me and my family a serious talk about disease progression, prognosis, and how I need to get my PCP more involved because of all these changes. It was different hearing that for the first time..
Yes, I have been and will be facing a lot of unknowns in the future, but the Lord is Sovereign! Since 2010, each year has been getting more and more difficult as you can see, but that’s the beauty of a NEW YEAR. 🙂 I look back on the previous year, and it always gives me so much hope, knowing that a gracious and faithful God will continue to carry me and my family through these ongoing challenges and trials.
It’s already 3 days into 2015! 🙂 I’ve shared this before because it’s my favorite verse! “…it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body, whether by life or by death. For to me to live is Christ, and to die is gain “(Philippians 1:20-21).