THIS IS MY STORY . . .

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Sep 15, 2019
* I shared this on Facebook and Instagram but wanted to post it on my blog as well since some of you here aren’t on social media. 💚 *   I originally had the background of this in blue, but then I remembered that today starts Mitochondrial Disease Awareness Week 2019!  So I of course had to change it to green. 😉  You know how diseases have a specific color/ribbon (gold is for childhood cancer, etc.)?  Well, green is for mito. 💚💚   To bring more awareness, I just wanted to share a little about how Mitochondrial DNA Depletion Syndrome affects me which is the [...]
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Aug 16, 2019
Hey friends,   First of all, I’m sorry it’s been so long again since I last blogged. :(  Last month, I had my mitochondrial appointment in San Diego—traveling and the trip in general was hard physically (more details below), so when we got home, I had terrible nystagmus and other rough mito symptoms.  And then, 2 weeks after that, I had an appointment with my pain doctor in Seattle.  So it’s been pretty busy!   I also never mentioned here that I got a little job in January.  I am a hand lettering artist with a company called Punkpost (you can look at their [...]
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Jul 2, 2018
Hey friends,   I got my MRI arthrogram results, and it shows that I do have a right hip labral tear. :(  So now I’m waiting to hear from the surgery scheduler to schedule orthopedic hip surgery.  Have to get insurance authorization first.  Can’t believe I have to go through the same process once again—-hip surgery was incredibly rough.... :(  I couldn’t bear weight on my affected leg for 2+ weeks, I had to use crutches, physical therapy twice a week was so very intense to try and prevent scar tissue from forming in the joint, and so much more...   Once I do [...]
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Jan 31, 2018
“Faith means believing that God is good.  Even if we can’t see it today, one day we’ll look back and see clearly His sovereignty, goodness, and kindness.” ~Randy Alcorn   Hey friends,   Just checking in with a short update. :)   The flu season has been so bad....so other than going to my doctor appointments, I realized I haven’t been “out” since Christmas Day. :(  I just can’t get the flu!  It would be really dangerous with mito.  So I’ve just been staying home and hand lettering (my new favorite thing to do! ;) )....it’s already been 4 [...]
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Dec 5, 2017
“Instead of a river, God often gives us a brook which may be running today and dried up tomorrow.  Why?  To teach us not to rest in our blessings, but in the blesser Himself.” -AW Pink   Hey friends,   I’m so sorry that I haven’t blogged since October!! :(  November was a pretty busy month with Thanksgiving and other things going on, and I was waiting and waiting to hear “the plan” from my surgeon..   Well, I finally heard confirmation from my surgeon, and the big news is, my major bladder/abdominal surgery has been postponed!  I wrote in my [...]
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Oct 5, 2017
Hey friends,   It's been over 3 weeks since I last posted, and again, there's so much to tell and to process. :(   But I will try to post an update for each medical specialty:   Podiatry~ On September the 19th, I had toenail surgery under anesthesia to correct the ingrown toenails.  Everything went well, but my toes are still bleeding/draining even now which means I have to continue soaking my feet in epsom salts.  It also hurts too much to wear shoes.  I have a follow-up with my podiatrist next week to make sure everything is healing [...]
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Sep 13, 2017
Hey friends,   Thank you so much for praying for me and my family.  It means a lot to all of us!  Your love and support really encourages me. :)   My sister had her abdominal CT scan, but aside from some incidental findings, the scan was completely normal and didn't explain her symptoms at all. :(  She saw her GI specialist who recommended an upper GI endoscopy.  That was done on the 11th.  Other than a little tissue inflammation (the dr. biopsied 2 areas, and we're now waiting for results of those), the scope, too, was completely normal and again doesn't explain [...]
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