THIS IS MY STORY . . .

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Sep 15, 2019
* I shared this on Facebook and Instagram but wanted to post it on my blog as well since some of you here aren’t on social media. 💚 *   I originally had the background of this in blue, but then I remembered that today starts Mitochondrial Disease Awareness Week 2019!  So I of course had to change it to green. 😉  You know how diseases have a specific color/ribbon (gold is for childhood cancer, etc.)?  Well, green is for mito. 💚💚   To bring more awareness, I just wanted to share a little about how Mitochondrial DNA Depletion Syndrome affects me which is the [...]
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Mar 25, 2019
Hey friends,   It’s been almost 3 whole months since I last blogged.  SO much has happened. :(   This will be incredibly long, but I just want to document everything so that I don’t forget..   On January 25th, I came down with a scratchy throat and congestion.  I thought it was turning into a cold, and I was a little bummed since it’s always harder for me to recover from sickness.   Well, Sunday evening (the 27th), I suddenly started experiencing a fever, chills, severe low back pain, high heart rate, and more.   Because I have a [...]
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Sep 12, 2018
Hey friends,   It's been more than a month since I last posted....and sometimes, no news DOESN'T mean good news. :(  This will be extremely long, but I want to document everything to remember....so here goes!   About 24 hours after my hip labral repair surgery on August 10th, I went into septic shock (there are 3 types of sepsis: sepsis which I’ve had twice, severe sepsis, and septic shock).  Everything happened SO fast, and it was so scary and tramautic to experience. :'(  The Rapid Response team was called because my blood pressure got dangerously low, I had a [...]
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Jan 9, 2018
Dear friends,   Happy New Year!!!  I’m very late in posting my annual end-of-the-year “reflections” post, but better late than never, right?! ;)  I didn't get to post this on December 31st like I usually do or even at the very beginning of this year because I was feeling pretty sick from a terrible feeding tube infection (more on that below)....right after that, I caught a bad virus, and both of those together really took its toll.. :(   2017 was the hardest year health-wise, and I know I said the same thing in 2016’s “reflections” post...but each year [...]
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Jul 14, 2017
Hi friends,   Wow!!  So much has happened, but I will just go right in and try to tell you everything..   The last week of June, I started feeling very off with episodes of nausea and severe head pain (not my "normal") all over....it even hurt to move my eyes. :(  So on Tuesday the 27th, I decided to check my temperature.  It was 100.9 degrees...I thought that was weird and wondered if it was registering correctly.  The next day, my nurse came over for my weekly blood draw and port needle/dressing site change.  She checked my vitals like she always does.  If I [...]
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Mar 7, 2017
"The manifestation of God's glory is not limited to miraculous healing. God refused to remove the apostle Paul's "thorn" of suffering so His grace might be seen and proven sufficient.  Though no one would choose hardships, there is no greater proof of God's power and grace than when He gives a person supernatural strength within the pain.  Such men, women, and children experience God's glory in a way which most of us know nothing.  Often this brings greater impact from God than would a miraculous healing!" ~Glory in Suffering   Hello friends,   *This update is [...]
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