THIS IS MY STORY . . .

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Oct 30, 2020
Hi, friends,   Wow, it’s been a while!  I just wanted to check in and post a health update. 😊   I’ve been home from the hospital for almost 2 whole months now which is so hard to believe.  Time is definitely flying, but at the same time, my recovery from the mito crash has been slow.   I’m still doing PT and OT at OHSU, and OT is especially hard.  Despite easy exercises that my hand therapist has me do, my arms and hands ache terribly the following day. 🙁  So we have to keep going one step back and try even simpler exercises.  My OT said it [...]
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Aug 16, 2019
Hey friends,   First of all, I’m sorry it’s been so long again since I last blogged. :(  Last month, I had my mitochondrial appointment in San Diego—traveling and the trip in general was hard physically (more details below), so when we got home, I had terrible nystagmus and other rough mito symptoms.  And then, 2 weeks after that, I had an appointment with my pain doctor in Seattle.  So it’s been pretty busy!   I also never mentioned here that I got a little job in January.  I am a hand lettering artist with a company called Punkpost (you can look at their [...]
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Jun 7, 2016
Last Thursday, I had my hip MRI arthrogram.  Before the actual scan, I was taken to Radiology, and the doctor injected a combination of saline, adrenaline, two types of contrast, and long-acting lidocaine all into my left hip joint.  The needle was very long! :O  They used long-acting lidocaine because they said that contrast really upsets the hip joint a couple days after the MRI.  The numbing medication took away my hip pain completely which was so nice. :)  Sadly, after it wore off on Friday, the pain has since doubled, and I can't move my leg well at all. :/   Yesterday, [...]
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