THIS IS MY STORY . . .

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Jul 25, 2018
Hey friends,   I’m sorry it’s taken me so long to write an update on how my neurometabolic appointment in San Diego went!   Been trying to pull all my thoughts together on what we learned at the appointment.   After updating my mito dr. on all that’s happened since I last saw him, he is thinking more and more that the POLG gene variant that was found in my whole exome sequencing is the likely culprit that’s causing my mitochondrial DNA depletion.   According to the NIH genetic reference site, POLG “is a DNA polymerase, which is a type of [...]
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Jul 2, 2018
Hey friends,   I got my MRI arthrogram results, and it shows that I do have a right hip labral tear. :(  So now I’m waiting to hear from the surgery scheduler to schedule orthopedic hip surgery.  Have to get insurance authorization first.  Can’t believe I have to go through the same process once again—-hip surgery was incredibly rough.... :(  I couldn’t bear weight on my affected leg for 2+ weeks, I had to use crutches, physical therapy twice a week was so very intense to try and prevent scar tissue from forming in the joint, and so much more...   Once I do [...]
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Jan 15, 2017
"Everything you face in your life and overcome with God's strength today prepares you for what will cross your path tomorrow." ~Joni Eareckson Tada   Hello friends,   So hard to believe that it's already the middle of January!  The year started off a little rough---I had a tunneled central line infection which began around January 1st....it was a New Year's present to me....just kidding. ;)  But by God's grace, the bacteria didn't travel to my blood and cause sepsis like last year.  The site, though, was pretty tender and starting to ooze.  My GI dr. [...]
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