THIS IS MY STORY . . .

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Aug 9, 2017
"But I will call on God, and the Lord will rescue me.  Morning, noon, and night, I cry out in my distress, and the Lord hears my voice.  He ransoms me and keeps me safe from the battle waged against me..." Psalm 55:16-18a   Hello friends,   Wow, where has the time gone??  I haven't blogged here in almost a whole month!   It's been a busy summer as my parents and I recently got back from Seattle.  They had a wedding to go to, so I wanted to come along so that I could see my pain dr. at UWMC. :)   Oh it was so good to see him! [...]
Written byKerissa Comments: (6)
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May 18, 2017
Hello friends,   Last week, I had a follow-up with my neurologist.  I wasn't expecting it, but she had a serious talk with me and my mom...  She told me that my mitochondrial disease is progressing, and because there's no cure and no good treatments (except antioxidants, symptom management, etc.), she said there's not much we can do except "keep me comfortable."  I know I've been getting worse medically....I wasn't this bad 2 years ago. :(  But to hear my doctor tell me this was really hard, and I'm still processing all of what she said.  No 24 year old should have to hear [...]
Written byKerissa Comments: (6)
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Mar 24, 2017
"Sometimes when we get overwhelmed we forget how big God is." -A.W. Tozer Hey everyone, I'm more than halfway through my 5 weeks of IV iron infusions....but I'm still very exhausted. :(  I woke up at 4 pm today because yesterday was so rough---my blood sodium and magnesium levels were pretty low which made me so weak.  My blood sugar yesterday also dropped.....my hands shook terribly from it, and I was nauseated.  Because I had to wake up early for an appointment, the mito fatigue made me not be able to empty my bladder numerous times throughout the day which was just plain agony.... [...]
Written byKerissa Comments: (2)
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May 31, 2016
Well, guys, I beat my record for the most appointments in one month.  I ended up having a total of 19 appointments this month, not 16 like I thought it'd be..  This month wore me out.. :(   On June 4, 2011, I graduated from high school.  June 4, 2016 is just around the corner.  It will be 5 whole years since I graduated...  5 years.  It's hard.  I'm still doing the same thing---seeing doctors, going to weekly appointments and physical therapy, taking numerous medications and supplements, sleeping 16-18 hours a day, hooking up to IV fluids every day and IV nutrition every [...]
Written byKerissa Comments: (2)