THIS IS MY STORY . . .

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May 18, 2017
Hello friends,   Last week, I had a follow-up with my neurologist.  I wasn't expecting it, but she had a serious talk with me and my mom...  She told me that my mitochondrial disease is progressing, and because there's no cure and no good treatments (except antioxidants, symptom management, etc.), she said there's not much we can do except "keep me comfortable."  I know I've been getting worse medically....I wasn't this bad 2 years ago. :(  But to hear my doctor tell me this was really hard, and I'm still processing all of what she said.  No 24 year old should have to hear [...]
Written byKerissa Comments: (6)
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Mar 24, 2017
"Sometimes when we get overwhelmed we forget how big God is." -A.W. Tozer Hey everyone, I'm more than halfway through my 5 weeks of IV iron infusions....but I'm still very exhausted. :(  I woke up at 4 pm today because yesterday was so rough---my blood sodium and magnesium levels were pretty low which made me so weak.  My blood sugar yesterday also dropped.....my hands shook terribly from it, and I was nauseated.  Because I had to wake up early for an appointment, the mito fatigue made me not be able to empty my bladder numerous times throughout the day which was just plain agony.... [...]
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Feb 22, 2017
"I choose to believe that God is good even though He doesn't heal me.  That when life goes wrong and I suffer, He is with me.  To join with the prophet to sing "He deals wondrously with us!" even when the wonderful life I expected doesn't turn out the way I'd hoped." | He Speaks in the Silence   Hello everyone,   First off, for those who aren't on Facebook, I just want to share with you some good news!!  Last week, I had a repeat venous duplex scan to check up on the DVT (blood clot) that formed in my subclavian and axillary veins.  Well, guess what?!  The [...]
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Nov 15, 2016
"Pain is a forest we all get lost in Between the branches, hope can be so hard to see And in the darkness, we've all got questions We're all just trying to make sense out of suffering, but You say I am blessed because of this So, I choose to believe As I carry this cross, You'll carry me..." ~Carry Me by Audrey Assad   Hey friends,   Just a short update.  Thank you all for continuing to pray for me!  I know I've said this before, but you are a huge encouragement!! :)   It has now been more than 3 months since my hip [...]
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Oct 26, 2016
"Joy is not necessarily the absence of suffering.  It is the presence of God." ~Sam Storms     Last week, I threw up a ton again, and it never gets easier. :(  We don't know what caused it this time...but my GI dr. thinks these vomiting episodes are from my gastroparesis/intestinal dysmotility.     My feet have been burning horribly lately.  I don't know if the nerve pain is getting exacerbated by the change in weather or what.  My pain dr. did switch up one of my medications a little while ago, so it could be because that is not at a [...]
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Aug 30, 2016
Hello friends. :)   I just wanted to say a huge thank-you for all of your prayers, cards, flowers, and encouragement!  I'm so thankful for all of you.  You guys brighten up my life.   I'm sorry it's been almost a month since I last blogged.  Post-op recovery from my hip surgery and muscle biopsy has been extremely rough, and I've had to literally draw all of my strength (physically, mentally, and spiritually) from the Lord!  This month of August, I had 18 appointments on top of surgery and hospital stays.  But the Lord is full of grace, and He sustained me through [...]
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Jun 29, 2016
Hello friends!   We are home!   My parents and I actually got home on Monday the 20th, and I'm just now blogging. :/  The United Mitochondrial Disease Foundation symposium in Seattle was an amazing first time experience!  Yes, it was rough as well because I hardly got any sleep which in turn made all my mito symptoms worse...but, the conference was hopeful and encouraging, too.   I wish next year's was going to be on the west coast again, but it's actually going to be held in Virginia!   I could say loads about this year's conference and take up all your time, but [...]
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