THIS IS MY STORY . . .

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Sep 13, 2017
Hey friends,   Thank you so much for praying for me and my family.  It means a lot to all of us!  Your love and support really encourages me. :)   My sister had her abdominal CT scan, but aside from some incidental findings, the scan was completely normal and didn't explain her symptoms at all. :(  She saw her GI specialist who recommended an upper GI endoscopy.  That was done on the 11th.  Other than a little tissue inflammation (the dr. biopsied 2 areas, and we're now waiting for results of those), the scope, too, was completely normal and again doesn't explain [...]
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Aug 24, 2017
"If I should say, 'My foot has slipped,' Your loving kindness, O Lord, will hold me up.  When my anxious thoughts multiply within me, Your consolations delight my soul." ~Psalm 94:18-19   Hey friends,   I don't even know where to begin. :(  These last several weeks have been so hard to say the least.  I'll try to explain everything, but just a warning---this is a super long update!!   First off, please please keep my sister in your prayers!  Over the course of 2 1/2 months, my sister has lost 12 pounds, and she continues to lose one pound [...]
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Aug 9, 2017
"But I will call on God, and the Lord will rescue me.  Morning, noon, and night, I cry out in my distress, and the Lord hears my voice.  He ransoms me and keeps me safe from the battle waged against me..." Psalm 55:16-18a   Hello friends,   Wow, where has the time gone??  I haven't blogged here in almost a whole month!   It's been a busy summer as my parents and I recently got back from Seattle.  They had a wedding to go to, so I wanted to come along so that I could see my pain dr. at UWMC. :)   Oh it was so good to see him! [...]
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Jun 21, 2017
"I have learned that faith means trusting in advance what will only make sense in reverse." ~Philip Yancey Hello friends,   Oh, where to begin??   On June 2nd, I decided to try a little more of my medical cannabis chocolate because I had a pounding migraine and my strong pain med wasn't helping.  Well, I had a terrible reaction to it which landed me in the ER by ambulance.  I experienced a pounding, high heart rate, muscle jerking all over (I was afraid all the jerking was going to cause a seizure), extreme muscle weakness, and drowsiness (so bad that I had to try my [...]
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May 18, 2017
Hello friends,   Last week, I had a follow-up with my neurologist.  I wasn't expecting it, but she had a serious talk with me and my mom...  She told me that my mitochondrial disease is progressing, and because there's no cure and no good treatments (except antioxidants, symptom management, etc.), she said there's not much we can do except "keep me comfortable."  I know I've been getting worse medically....I wasn't this bad 2 years ago. :(  But to hear my doctor tell me this was really hard, and I'm still processing all of what she said.  No 24 year old should have to hear [...]
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Mar 24, 2017
"Sometimes when we get overwhelmed we forget how big God is." -A.W. Tozer Hey everyone, I'm more than halfway through my 5 weeks of IV iron infusions....but I'm still very exhausted. :(  I woke up at 4 pm today because yesterday was so rough---my blood sodium and magnesium levels were pretty low which made me so weak.  My blood sugar yesterday also dropped.....my hands shook terribly from it, and I was nauseated.  Because I had to wake up early for an appointment, the mito fatigue made me not be able to empty my bladder numerous times throughout the day which was just plain agony.... [...]
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Feb 22, 2017
"I choose to believe that God is good even though He doesn't heal me.  That when life goes wrong and I suffer, He is with me.  To join with the prophet to sing "He deals wondrously with us!" even when the wonderful life I expected doesn't turn out the way I'd hoped." | He Speaks in the Silence   Hello everyone,   First off, for those who aren't on Facebook, I just want to share with you some good news!!  Last week, I had a repeat venous duplex scan to check up on the DVT (blood clot) that formed in my subclavian and axillary veins.  Well, guess what?!  The [...]
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Nov 15, 2016
"Pain is a forest we all get lost in Between the branches, hope can be so hard to see And in the darkness, we've all got questions We're all just trying to make sense out of suffering, but You say I am blessed because of this So, I choose to believe As I carry this cross, You'll carry me..." ~Carry Me by Audrey Assad   Hey friends,   Just a short update.  Thank you all for continuing to pray for me!  I know I've said this before, but you are a huge encouragement!! :)   It has now been more than 3 months since my hip [...]
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Oct 26, 2016
"Joy is not necessarily the absence of suffering.  It is the presence of God." ~Sam Storms     Last week, I threw up a ton again, and it never gets easier. :(  We don't know what caused it this time...but my GI dr. thinks these vomiting episodes are from my gastroparesis/intestinal dysmotility.     My feet have been burning horribly lately.  I don't know if the nerve pain is getting exacerbated by the change in weather or what.  My pain dr. did switch up one of my medications a little while ago, so it could be because that is not at a [...]
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Aug 30, 2016
Hello friends. :)   I just wanted to say a huge thank-you for all of your prayers, cards, flowers, and encouragement!  I'm so thankful for all of you.  You guys brighten up my life.   I'm sorry it's been almost a month since I last blogged.  Post-op recovery from my hip surgery and muscle biopsy has been extremely rough, and I've had to literally draw all of my strength (physically, mentally, and spiritually) from the Lord!  This month of August, I had 18 appointments on top of surgery and hospital stays.  But the Lord is full of grace, and He sustained me through [...]
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