THIS IS MY STORY . . .

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Mar 24, 2017
"Sometimes when we get overwhelmed we forget how big God is." -A.W. Tozer Hey everyone, I'm more than halfway through my 5 weeks of IV iron infusions....but I'm still very exhausted. :(  I woke up at 4 pm today because yesterday was so rough---my blood sodium and magnesium levels were pretty low which made me so weak.  My blood sugar yesterday also dropped.....my hands shook terribly from it, and I was nauseated.  Because I had to wake up early for an appointment, the mito fatigue made me not be able to empty my bladder numerous times throughout the day which was just plain agony.... [...]
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Mar 7, 2017
"The manifestation of God's glory is not limited to miraculous healing. God refused to remove the apostle Paul's "thorn" of suffering so His grace might be seen and proven sufficient.  Though no one would choose hardships, there is no greater proof of God's power and grace than when He gives a person supernatural strength within the pain.  Such men, women, and children experience God's glory in a way which most of us know nothing.  Often this brings greater impact from God than would a miraculous healing!" ~Glory in Suffering   Hello friends,   *This update is [...]
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Feb 22, 2017
"I choose to believe that God is good even though He doesn't heal me.  That when life goes wrong and I suffer, He is with me.  To join with the prophet to sing "He deals wondrously with us!" even when the wonderful life I expected doesn't turn out the way I'd hoped." | He Speaks in the Silence   Hello everyone,   First off, for those who aren't on Facebook, I just want to share with you some good news!!  Last week, I had a repeat venous duplex scan to check up on the DVT (blood clot) that formed in my subclavian and axillary veins.  Well, guess what?!  The [...]
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Feb 7, 2017
Hello friends,   This is super long, so feel free to take a break and come back to this if need be... ;)  I'm sorry it's been so long since I've done a proper update.  Too much has happened. :O  Thank you so much for all your prayers, cards, and emails!  You fill my life with joy time and again.   Mitochondrial Medicine--- On January 17, my parents and I saw my mitochondrial specialist in San Diego.  I have now seen him in clinic 5 times.  At this appointment, he looked over all of my muscle biopsy results (the electron transport chain enzyme [...]
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Jan 23, 2017
"God is closer than your troubles and stronger than your fears." ~Joni Eareckson Tada    Would appreciate your prayers.  Today I was thrown a curve ball, and it hit me in the head...   I had 3 appointments today and am so exhausted!  I have pre-op tomorrow, a home health nurse visit on Wednesday, 2 more appointments on Thursday, and surgery on Friday!   It's been a whirlwind, and this on top of my mito appointment last week (which, btw, I haven't even had time to blog about yet.... :( ) has been rough.  The only thing I can do is take a [...]
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Jan 15, 2017
"Everything you face in your life and overcome with God's strength today prepares you for what will cross your path tomorrow." ~Joni Eareckson Tada   Hello friends,   So hard to believe that it's already the middle of January!  The year started off a little rough---I had a tunneled central line infection which began around January 1st....it was a New Year's present to me....just kidding. ;)  But by God's grace, the bacteria didn't travel to my blood and cause sepsis like last year.  The site, though, was pretty tender and starting to ooze.  My GI dr. [...]
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Dec 31, 2016
2016 was a hard year.  The hardest yet.  But as I think back on these last 12 months, I can't help but see the Lord's hand through all of it.  There were so many changes and times of discouragement, but Jesus Christ in His unfailing love went before me every single day and gave me courage to push through.   This year alone, I had: 6 hospital stays 4 ER visits 2 ambulance rides 95 doctor appointments (I had 51 last year) 5 weeks of IV iron [...]
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Dec 7, 2016
Hey friends,   Just a short update.  Since the day after Thanksgiving, I've been sick with low-grade fevers, a painful sore throat, swollen glands, a barking cough day and night, and terrible fatigue.  The doctor thought at first that it was a bad virus, but now he believes I have a bacterial infection in my throat (basically "strep," but caused by a different bacteria...not the streptococcal bacteria).  He said I'm immunocompromised....this is because of mito. :(  So he prescribed a week's worth of antibiotics and codeine cough syrup.  Still not feeling any better yet, but it [...]
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Nov 15, 2016
"Pain is a forest we all get lost in Between the branches, hope can be so hard to see And in the darkness, we've all got questions We're all just trying to make sense out of suffering, but You say I am blessed because of this So, I choose to believe As I carry this cross, You'll carry me..." ~Carry Me by Audrey Assad   Hey friends,   Just a short update.  Thank you all for continuing to pray for me!  I know I've said this before, but you are a huge encouragement!! :)   It has now been more than 3 months since my hip [...]
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Oct 26, 2016
"Joy is not necessarily the absence of suffering.  It is the presence of God." ~Sam Storms     Last week, I threw up a ton again, and it never gets easier. :(  We don't know what caused it this time...but my GI dr. thinks these vomiting episodes are from my gastroparesis/intestinal dysmotility.     My feet have been burning horribly lately.  I don't know if the nerve pain is getting exacerbated by the change in weather or what.  My pain dr. did switch up one of my medications a little while ago, so it could be because that is not at a [...]
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