THIS IS MY STORY . . .

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Sep 15, 2019
* I shared this on Facebook and Instagram but wanted to post it on my blog as well since some of you here aren’t on social media. 💚 *   I originally had the background of this in blue, but then I remembered that today starts Mitochondrial Disease Awareness Week 2019!  So I of course had to change it to green. 😉  You know how diseases have a specific color/ribbon (gold is for childhood cancer, etc.)?  Well, green is for mito. 💚💚   To bring more awareness, I just wanted to share a little about how Mitochondrial DNA Depletion Syndrome affects me which is the [...]
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Sep 13, 2017
Hey friends,   Thank you so much for praying for me and my family.  It means a lot to all of us!  Your love and support really encourages me. :)   My sister had her abdominal CT scan, but aside from some incidental findings, the scan was completely normal and didn't explain her symptoms at all. :(  She saw her GI specialist who recommended an upper GI endoscopy.  That was done on the 11th.  Other than a little tissue inflammation (the dr. biopsied 2 areas, and we're now waiting for results of those), the scope, too, was completely normal and again doesn't explain [...]
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Dec 31, 2016
2016 was a hard year.  The hardest yet.  But as I think back on these last 12 months, I can't help but see the Lord's hand through all of it.  There were so many changes and times of discouragement, but Jesus Christ in His unfailing love went before me every single day and gave me courage to push through.   This year alone, I had: 6 hospital stays 4 ER visits 2 ambulance rides 95 doctor appointments (I had 51 last year) 5 weeks of IV iron [...]
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May 31, 2016
Well, guys, I beat my record for the most appointments in one month.  I ended up having a total of 19 appointments this month, not 16 like I thought it'd be..  This month wore me out.. :(   On June 4, 2011, I graduated from high school.  June 4, 2016 is just around the corner.  It will be 5 whole years since I graduated...  5 years.  It's hard.  I'm still doing the same thing---seeing doctors, going to weekly appointments and physical therapy, taking numerous medications and supplements, sleeping 16-18 hours a day, hooking up to IV fluids every day and IV nutrition every [...]
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Apr 28, 2016
Hello friends,   Last week, I saw my general surgeon who changed my jejunostomy feeding tube to a new one.  The replacement was so painful, and it's done while you're awake!  Basically, the doctors pull the old tube out of the stoma (hole) in my small intestine and stuff a new one in. ;)  Glad that's over!  My feeding tube is nice and new now. :)  They didn't have my tube size in stock, so we decided to try a smaller size....and it's soo much better!  The raw skin around my tube site is now healing which is a huge blessing!   All the iron labs that my GI [...]
Written byKerissa Comments: (8)