May 31, 2016
Well, guys, I beat my record for the most appointments in one month.  I ended up having a total of 19 appointments this month, not 16 like I thought it'd be..  This month wore me out.. :(   On June 4, 2011, I graduated from high school.  June 4, 2016 is just around the corner.  It will be 5 whole years since I graduated...  5 years.  It's hard.  I'm still doing the same thing---seeing doctors, going to weekly appointments and physical therapy, taking numerous medications and supplements, sleeping 16-18 hours a day, hooking up to IV fluids every day and IV nutrition every [...]
Written byKerissa Comments: (2)
Apr 28, 2016
Hello friends,   Last week, I saw my general surgeon who changed my jejunostomy feeding tube to a new one.  The replacement was so painful, and it's done while you're awake!  Basically, the doctors pull the old tube out of the stoma (hole) in my small intestine and stuff a new one in. ;)  Glad that's over!  My feeding tube is nice and new now. :)  They didn't have my tube size in stock, so we decided to try a smaller size....and it's soo much better!  The raw skin around my tube site is now healing which is a huge blessing!   All the iron labs that my GI [...]
Written byKerissa Comments: (8)