THIS IS MY STORY . . .

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Jun 29, 2016
Hello friends!   We are home!   My parents and I actually got home on Monday the 20th, and I'm just now blogging. :/  The United Mitochondrial Disease Foundation symposium in Seattle was an amazing first time experience!  Yes, it was rough as well because I hardly got any sleep which in turn made all my mito symptoms worse...but, the conference was hopeful and encouraging, too.   I wish next year's was going to be on the west coast again, but it's actually going to be held in Virginia!   I could say loads about this year's conference and take up all your time, but [...]
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May 31, 2016
Well, guys, I beat my record for the most appointments in one month.  I ended up having a total of 19 appointments this month, not 16 like I thought it'd be..  This month wore me out.. :(   On June 4, 2011, I graduated from high school.  June 4, 2016 is just around the corner.  It will be 5 whole years since I graduated...  5 years.  It's hard.  I'm still doing the same thing---seeing doctors, going to weekly appointments and physical therapy, taking numerous medications and supplements, sleeping 16-18 hours a day, hooking up to IV fluids every day and IV nutrition every [...]
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May 20, 2016
I'm sitting here in my naturopathic physician's clinic, receiving IV alpha lipoic acid which is what my pain dr. and mito specialist recommended.  So I thought I'd post a short update. :)  This is my third time here....last week, the ND gave me IV glutathione with taurine and B12.  But so far, I haven't noticed any benefit..  It's a blessing that this dr. is so close to our home. :)  Not sure how often I'll be able to see him because it's very expensive.  I asked him if he's had any mitochondrial disease patients, and he said no.  He does know about it and how bad it [...]
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May 9, 2016
Would appreciate your prayers!  I know I've said this before, but this journey just gets harder and harder...  I often wonder what will happen next, but I'm reminded to take each day as it comes.  The Lord is full of grace, and I will lean on Him.   Ever since February, I've been dealing with sharp hip pain.  My left leg gets stuck and doesn't move well because of this hip issue.  Nothing is helping...not even continuous physical therapy. :(  I followed up with my Orthopaedics specialist this morning, and he now thinks I likely have a torn labrum in my hip. :(  I have to [...]
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