THIS IS MY STORY . . .

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Mar 7, 2017
"The manifestation of God's glory is not limited to miraculous healing. God refused to remove the apostle Paul's "thorn" of suffering so His grace might be seen and proven sufficient.  Though no one would choose hardships, there is no greater proof of God's power and grace than when He gives a person supernatural strength within the pain.  Such men, women, and children experience God's glory in a way which most of us know nothing.  Often this brings greater impact from God than would a miraculous healing!" ~Glory in Suffering   Hello friends,   *This update is [...]
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Feb 7, 2017
Hello friends,   This is super long, so feel free to take a break and come back to this if need be... ;)  I'm sorry it's been so long since I've done a proper update.  Too much has happened. :O  Thank you so much for all your prayers, cards, and emails!  You fill my life with joy time and again.   Mitochondrial Medicine--- On January 17, my parents and I saw my mitochondrial specialist in San Diego.  I have now seen him in clinic 5 times.  At this appointment, he looked over all of my muscle biopsy results (the electron transport chain enzyme [...]
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Jan 23, 2017
"God is closer than your troubles and stronger than your fears." ~Joni Eareckson Tada    Would appreciate your prayers.  Today I was thrown a curve ball, and it hit me in the head...   I had 3 appointments today and am so exhausted!  I have pre-op tomorrow, a home health nurse visit on Wednesday, 2 more appointments on Thursday, and surgery on Friday!   It's been a whirlwind, and this on top of my mito appointment last week (which, btw, I haven't even had time to blog about yet.... :( ) has been rough.  The only thing I can do is take a [...]
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Dec 7, 2016
Hey friends,   Just a short update.  Since the day after Thanksgiving, I've been sick with low-grade fevers, a painful sore throat, swollen glands, a barking cough day and night, and terrible fatigue.  The doctor thought at first that it was a bad virus, but now he believes I have a bacterial infection in my throat (basically "strep," but caused by a different bacteria...not the streptococcal bacteria).  He said I'm immunocompromised....this is because of mito. :(  So he prescribed a week's worth of antibiotics and codeine cough syrup.  Still not feeling any better yet, but it [...]
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Nov 15, 2016
"Pain is a forest we all get lost in Between the branches, hope can be so hard to see And in the darkness, we've all got questions We're all just trying to make sense out of suffering, but You say I am blessed because of this So, I choose to believe As I carry this cross, You'll carry me..." ~Carry Me by Audrey Assad   Hey friends,   Just a short update.  Thank you all for continuing to pray for me!  I know I've said this before, but you are a huge encouragement!! :)   It has now been more than 3 months since my hip [...]
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Oct 26, 2016
"Joy is not necessarily the absence of suffering.  It is the presence of God." ~Sam Storms     Last week, I threw up a ton again, and it never gets easier. :(  We don't know what caused it this time...but my GI dr. thinks these vomiting episodes are from my gastroparesis/intestinal dysmotility.     My feet have been burning horribly lately.  I don't know if the nerve pain is getting exacerbated by the change in weather or what.  My pain dr. did switch up one of my medications a little while ago, so it could be because that is not at a [...]
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Oct 10, 2016
Hey friends,   A lot has happened since I last posted..   For those who were on FB at the end of September, you can just pass over this whole paragraph as I'm basically saying the same thing. lol  On September 22nd, I had an adverse medication reaction that exacerbated my mitochondrial disease....I was taken to the ER by ambulance because I experienced nausea/vomiting (that wasn't resolving with my home anti-nausea meds), high heart rate/respirations, and weakness.  In the ER, I had to be given oxygen because my saturations kept dropping to 82.  My white blood cell [...]
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Aug 2, 2016
This past Friday, I had my Orthopedic Pre-op appointment.  I saw my surgeon's physician assistant, and she explained what's involved with the surgeries, the extensive rehabilitation protocol, and much more.  In addition to the hip labral and cartilage repairs, my surgeon will possibly be doing a femoral neck osteoplasty and acetabular rim trimming (this depends on what she finds inside my hip joint).  During surgery, the doctors will do a femoral nerve block for pain management purposes which will hopefully last 1-2 days.   After surgery, I have to take an anti-inflammatory [...]
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Jun 29, 2016
Hello friends!   We are home!   My parents and I actually got home on Monday the 20th, and I'm just now blogging. :/  The United Mitochondrial Disease Foundation symposium in Seattle was an amazing first time experience!  Yes, it was rough as well because I hardly got any sleep which in turn made all my mito symptoms worse...but, the conference was hopeful and encouraging, too.   I wish next year's was going to be on the west coast again, but it's actually going to be held in Virginia!   I could say loads about this year's conference and take up all your time, but [...]
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May 31, 2016
Well, guys, I beat my record for the most appointments in one month.  I ended up having a total of 19 appointments this month, not 16 like I thought it'd be..  This month wore me out.. :(   On June 4, 2011, I graduated from high school.  June 4, 2016 is just around the corner.  It will be 5 whole years since I graduated...  5 years.  It's hard.  I'm still doing the same thing---seeing doctors, going to weekly appointments and physical therapy, taking numerous medications and supplements, sleeping 16-18 hours a day, hooking up to IV fluids every day and IV nutrition every [...]
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