THIS IS MY STORY . . .

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Dec 7, 2016
Hey friends,   Just a short update.  Since the day after Thanksgiving, I've been sick with low-grade fevers, a painful sore throat, swollen glands, a barking cough day and night, and terrible fatigue.  The doctor thought at first that it was a bad virus, but now he believes I have a bacterial infection in my throat (basically "strep," but caused by a different bacteria...not the streptococcal bacteria).  He said I'm immunocompromised....this is because of mito. :(  So he prescribed a week's worth of antibiotics and codeine cough syrup.  Still not feeling any better yet, but it [...]
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Nov 15, 2016
"Pain is a forest we all get lost in Between the branches, hope can be so hard to see And in the darkness, we've all got questions We're all just trying to make sense out of suffering, but You say I am blessed because of this So, I choose to believe As I carry this cross, You'll carry me..." ~Carry Me by Audrey Assad   Hey friends,   Just a short update.  Thank you all for continuing to pray for me!  I know I've said this before, but you are a huge encouragement!! :)   It has now been more than 3 months since my hip [...]
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Oct 26, 2016
"Joy is not necessarily the absence of suffering.  It is the presence of God." ~Sam Storms     Last week, I threw up a ton again, and it never gets easier. :(  We don't know what caused it this time...but my GI dr. thinks these vomiting episodes are from my gastroparesis/intestinal dysmotility.     My feet have been burning horribly lately.  I don't know if the nerve pain is getting exacerbated by the change in weather or what.  My pain dr. did switch up one of my medications a little while ago, so it could be because that is not at a [...]
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Oct 10, 2016
Hey friends,   A lot has happened since I last posted..   For those who were on FB at the end of September, you can just pass over this whole paragraph as I'm basically saying the same thing. lol  On September 22nd, I had an adverse medication reaction that exacerbated my mitochondrial disease....I was taken to the ER by ambulance because I experienced nausea/vomiting (that wasn't resolving with my home anti-nausea meds), high heart rate/respirations, and weakness.  In the ER, I had to be given oxygen because my saturations kept dropping to 82.  My white blood cell [...]
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Sep 21, 2016
Hey guys,   This week is Mitochondrial Disease Awareness 2016! :)   I just thought I'd go right in and share a little bit about mito in this post and how it affects so much of the body.   I have a mitochondrial depletion disorder which basically means I have less mitochondria than the normal person.  My depletion is very significant. :(  You might ask, What are mitochondria?  In simple terms, mitochondria are the energy powerhouses in every cell (except red blood cells) that make ATP.  Every organ in the body needs energy to function.  Without enough energy [...]
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Aug 30, 2016
Hello friends. :)   I just wanted to say a huge thank-you for all of your prayers, cards, flowers, and encouragement!  I'm so thankful for all of you.  You guys brighten up my life.   I'm sorry it's been almost a month since I last blogged.  Post-op recovery from my hip surgery and muscle biopsy has been extremely rough, and I've had to literally draw all of my strength (physically, mentally, and spiritually) from the Lord!  This month of August, I had 18 appointments on top of surgery and hospital stays.  But the Lord is full of grace, and He sustained me through [...]
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Aug 2, 2016
This past Friday, I had my Orthopedic Pre-op appointment.  I saw my surgeon's physician assistant, and she explained what's involved with the surgeries, the extensive rehabilitation protocol, and much more.  In addition to the hip labral and cartilage repairs, my surgeon will possibly be doing a femoral neck osteoplasty and acetabular rim trimming (this depends on what she finds inside my hip joint).  During surgery, the doctors will do a femoral nerve block for pain management purposes which will hopefully last 1-2 days.   After surgery, I have to take an anti-inflammatory [...]
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Jul 13, 2016
Oscar Wilde wrote: "In this world there are only two tragedies. One is not getting what one wants, and the other is getting it." To rephrase his thought, I suggest there are likewise only two joys. One is having God answer all your prayers; the other is not receiving the answer to all your prayers. I believe this because I have found that God knows my needs infinitely better than I know them. And He is utterly dependable, no matter which direction our circumstances take us. ~Joni Eareckson Tada   Hey friends,   Thank you for always checking in and reading my blog. [...]
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Jun 29, 2016
Hello friends!   We are home!   My parents and I actually got home on Monday the 20th, and I'm just now blogging. :/  The United Mitochondrial Disease Foundation symposium in Seattle was an amazing first time experience!  Yes, it was rough as well because I hardly got any sleep which in turn made all my mito symptoms worse...but, the conference was hopeful and encouraging, too.   I wish next year's was going to be on the west coast again, but it's actually going to be held in Virginia!   I could say loads about this year's conference and take up all your time, but [...]
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Jun 7, 2016
Last Thursday, I had my hip MRI arthrogram.  Before the actual scan, I was taken to Radiology, and the doctor injected a combination of saline, adrenaline, two types of contrast, and long-acting lidocaine all into my left hip joint.  The needle was very long! :O  They used long-acting lidocaine because they said that contrast really upsets the hip joint a couple days after the MRI.  The numbing medication took away my hip pain completely which was so nice. :)  Sadly, after it wore off on Friday, the pain has since doubled, and I can't move my leg well at all. :/   Yesterday, [...]
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