THIS IS MY STORY . . .

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May 1, 2012
This has nothing to do with CRPS and EDS, but I just wanted to share some exciting news! :)  As of April 20th, I am officially a medical assistant!!  On January 19, 2012, I began U.S. Career Institute's online medical assisting program.  Their MA program is self-paced, and even though I had up to a year to finish it, I completed it in just over 3 months because I loved it so much! :o) Right now, I'm studying to get certified as a Registered Medical Assistant (RMA).  I look forward to seeing where God leads me on this path!  If this CRPS/EDS business stays stable, I hope to get my [...]
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Apr 25, 2012
POTS (and no, this post has nothing to do with teapots, flower pots, coffee pots, or "chamber" pots ;)A quick update, friends!  Today, my primary care dr. diagnosed me with Postural Orthostatic Tachycardia Syndrome.  What a long name!  This is my third "syndrome" diagnosis...!  POTS is a dysfunction of the autonomic nervous system and is associated with CRPS and EDS.  I'm thankful the Lord gave my dr. wisdom to see this, and I'm so glad that we're no longer in the dark as to why I've been having tachycardia, an irregular heart beat, and episodes of my heart rate [...]
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Apr 21, 2012
Hi, guys!As promised, here's just a quick little update.  Still waiting for my dr. to look over the results, but I did get a chance to see them today!  The cardiologist said all looks normal, but some of the structures couldn't be visualized very well for some reason, so I'm not sure what that means yet...  I hope to talk with my dr. about all this next week.  The chest pain, irregular heart beat, and tachycardia still hasn't been resolved yet, so I'm praying all this can still be looked into in the future.  I will keep giving little updates about everything!Thank you [...]
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Apr 18, 2012
Tomorrow morning, after physical therapy, I will be getting my first heart echo!  The test results may be perfectly normal, or they may show I have mitral valve prolapse caused by EDS.  I'd appreciate your prayers!  Pray that the test will clearly show whether I have MVP or not.  I've been having chest pain and an irregular heart beat, so the doctors aren't sure what's going on yet... :I recently found two blogs of two different girls close to my age who have CRPS and EDS! :)  This has been a blessing from the Lord.  It's been so encouraging connecting, [...]
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Apr 3, 2012
The Lord is my strength and my shield;in Him my heart trusts, and I am helped;my heart exults,and with my song I give thanks to Him.-Psalm 28:7About two weeks ago, I received a needed varicella vaccine in my right upper arm because I didn't really think it would cause a CRPS flare-up (usually, CRPS starts in a hand or foot).  Well, it did just what I thought wouldn't happen...from shoulder to elbow, my arm has now been hurting, aching, burning, and throbbing.  When I was first diagnosed with CRPS in my right foot back in March 2011, it never entered my mind that I would later have [...]
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Mar 27, 2012
Hey, friends! :)It's time for a new update!  About two weeks ago, I saw my pain management dr.  It went well.  I learned something new about him. ;)  He saw me reading Wuthering Heights, so he told me he read that when he took Advanced Placement English in the ol' days.  Haha! :D  He's the first guy I know who's read a book like that.  On a more a serious note, I'm to stay at 50 mg of nortriptyline and not increase for now because I've been experiencing something called orthostatic hypotension.  He also referred me to OHSU rheumatology because my hand [...]
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Mar 14, 2012
"Weeping may tarry for the night,but joy comes with the morning."Psalm 30:5There have been days when I would cry great tears on my pillow at night in the darkness, not wanting anyone to see.  From those past times, I would ask God, "Why is this happening?  Why me?  Why do I have to be the one with an uncommon disease?  Why is CRPS such a difficult condition to treat?"  And deep down inside, I would hear the Lord say to me, "You don't need to know 'why.'  Just trust Me."  It's been almost 2 years since this whole journey started.  And today is a [...]
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Mar 12, 2012
I just finished writing in my journal tonight and thought I'd share with you my entry because today was my "March 11th Day":Today marks the one year anniversary of the cortisone shot that I had in the bottom of my right foot.  Those were hard days after I had that procedure.  The unrelenting pain was horrible.  And yet...I see God's providence throughout it all.  If I didn't get that shot, I probably would still be tip-toeing on my right foot, wondering why I still have lingering foot pain 8 months after my hemangioma surgery.  So God brought me to two OHSU [...]
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Mar 1, 2012
It's been over two weeks since I last posted because life has been busy!  I'm still trying to get used to this new medication I've been taking.  It makes me sleepy, my mouth gets so dry, and if I get up too fast from sitting, I feel lightheaded.  But, it has been helping the burning pain in my arm which is a praise. :)  So I guess taking the med is a win-lose situation. ;)  I'm still going strong with therapy, and for the past month or so, it's been extra tough---1. because it's painful  2. because I realize just how weak I am strength-wise  3. [...]
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Feb 13, 2012
"The steps of a man are established by the Lord, and He delights in his way. When he falls, he will not be hurled headlong, because the Lord is the One holding his hand." ~Psalm 37:23-24After going through a pretty difficult week last week, one of my friends shared this section of Scripture with me.  Through her, God spoke to my heart.  After reading the passage, I knew right then that it was from the Lord.  Read these two verses again.  Ponder it.  Don't they fill you with peace? :)  As I thought about it deeply, one of the things I learned is that it's a [...]
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