THIS IS MY STORY . . .

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Jun 6, 2018
“When the storms of life hit, they almost always appear stronger to us than God’s word.  It is crucial for us to remember that our perceptions can be deceptive.  When circumstances strike fear into our hearts, the questions we must always ask ourselves is, where is your faith?  What God wants is for you to trust what He says over what you see.” ~unknown (I took a screenshot of this quote months ago and can’t remember who wrote it.. 😅)   Hey friends,   On June 4th, 2011, I graduated from high school.  That was seven years ago.  7 whole years. :(  It's been [...]
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May 1, 2018
Hey friends,   I’m sorry I haven’t posted in a while!  It’s been a pretty rough two months.. :(   The last half of March, I started experiencing severe, cramping abdominal pain, terrible nausea, distention (I looked pregnant! :( )....and just felt really unwell.  The abdominal pain started happening every few days to every single day.  Pretty soon it hurt terribly to eat (much worse than the usual pain from gastroparesis) and drink water. :(  Even pushing meds through my jejunostomy tube caused pain right away.  I lost weight and felt really weak.  Everything [...]
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Mar 16, 2018
Hello friends,   My family and I recently got back from an amazing vacation in Orlando, Florida!  I shared this on FB, but for those who didn’t know, a very kind friend and his wife wanted me to “make a wish,” so I chose Disney World/Universal Studios since I’ve never been there, and my family and I all had the most wonderful time!!!   The weather was so beautiful, the food was amazing, the parks, rides, and shows were all so very fun, and it was just so nice being able to get away from weekly doctor appointments and all things medical-related.   Anyways, this [...]
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Jan 31, 2018
“Faith means believing that God is good.  Even if we can’t see it today, one day we’ll look back and see clearly His sovereignty, goodness, and kindness.” ~Randy Alcorn   Hey friends,   Just checking in with a short update. :)   The flu season has been so bad....so other than going to my doctor appointments, I realized I haven’t been “out” since Christmas Day. :(  I just can’t get the flu!  It would be really dangerous with mito.  So I’ve just been staying home and hand lettering (my new favorite thing to do! ;) )....it’s already been 4 [...]
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Jan 9, 2018
Dear friends,   Happy New Year!!!  I’m very late in posting my annual end-of-the-year “reflections” post, but better late than never, right?! ;)  I didn't get to post this on December 31st like I usually do or even at the very beginning of this year because I was feeling pretty sick from a terrible feeding tube infection (more on that below)....right after that, I caught a bad virus, and both of those together really took its toll.. :(   2017 was the hardest year health-wise, and I know I said the same thing in 2016’s “reflections” post...but each year [...]
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Dec 5, 2017
“Instead of a river, God often gives us a brook which may be running today and dried up tomorrow.  Why?  To teach us not to rest in our blessings, but in the blesser Himself.” -AW Pink   Hey friends,   I’m so sorry that I haven’t blogged since October!! :(  November was a pretty busy month with Thanksgiving and other things going on, and I was waiting and waiting to hear “the plan” from my surgeon..   Well, I finally heard confirmation from my surgeon, and the big news is, my major bladder/abdominal surgery has been postponed!  I wrote in my [...]
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Oct 27, 2017
Hello friends,   I recently had a long appointment with my urology surgeon at Doernbecher’s.  She explained how this is a very major bladder surgery....and I was so shocked to hear her say that this surgery can last up to 12 hours....(for example, it could start at around 7:30 AM but not end until 7:30 at night)...! :O  It’s so scary to think about, but this surgery is so needed to protect my kidneys/bladder long-term.  I never really described the surgery or even told you what it’s called, but I will try explaining it now.   This surgery is called a [...]
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Oct 5, 2017
Hey friends,   It's been over 3 weeks since I last posted, and again, there's so much to tell and to process. :(   But I will try to post an update for each medical specialty:   Podiatry~ On September the 19th, I had toenail surgery under anesthesia to correct the ingrown toenails.  Everything went well, but my toes are still bleeding/draining even now which means I have to continue soaking my feet in epsom salts.  It also hurts too much to wear shoes.  I have a follow-up with my podiatrist next week to make sure everything is healing [...]
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Sep 13, 2017
Hey friends,   Thank you so much for praying for me and my family.  It means a lot to all of us!  Your love and support really encourages me. :)   My sister had her abdominal CT scan, but aside from some incidental findings, the scan was completely normal and didn't explain her symptoms at all. :(  She saw her GI specialist who recommended an upper GI endoscopy.  That was done on the 11th.  Other than a little tissue inflammation (the dr. biopsied 2 areas, and we're now waiting for results of those), the scope, too, was completely normal and again doesn't explain [...]
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Aug 24, 2017
"If I should say, 'My foot has slipped,' Your loving kindness, O Lord, will hold me up.  When my anxious thoughts multiply within me, Your consolations delight my soul." ~Psalm 94:18-19   Hey friends,   I don't even know where to begin. :(  These last several weeks have been so hard to say the least.  I'll try to explain everything, but just a warning---this is a super long update!!   First off, please please keep my sister in your prayers!  Over the course of 2 1/2 months, my sister has lost 12 pounds, and she continues to lose one pound [...]
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