THIS IS MY STORY . . .

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Jan 9, 2018
Dear friends,   Happy New Year!!!  I’m very late in posting my annual end-of-the-year “reflections” post, but better late than never, right?! ;)  I didn't get to post this on December 31st like I usually do or even at the very beginning of this year because I was feeling pretty sick from a terrible feeding tube infection (more on that below)....right after that, I caught a bad virus, and both of those together really took its toll.. :(   2017 was the hardest year health-wise, and I know I said the same thing in 2016’s “reflections” post...but each year [...]
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Dec 5, 2017
“Instead of a river, God often gives us a brook which may be running today and dried up tomorrow.  Why?  To teach us not to rest in our blessings, but in the blesser Himself.” -AW Pink   Hey friends,   I’m so sorry that I haven’t blogged since October!! :(  November was a pretty busy month with Thanksgiving and other things going on, and I was waiting and waiting to hear “the plan” from my surgeon..   Well, I finally heard confirmation from my surgeon, and the big news is, my major bladder/abdominal surgery has been postponed!  I wrote in my [...]
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Oct 27, 2017
Hello friends,   I recently had a long appointment with my urology surgeon at Doernbecher’s.  She explained how this is a very major bladder surgery....and I was so shocked to hear her say that this surgery can last up to 12 hours....(for example, it could start at around 7:30 AM but not end until 7:30 at night)...! :O  It’s so scary to think about, but this surgery is so needed to protect my kidneys/bladder long-term.  I never really described the surgery or even told you what it’s called, but I will try explaining it now.   This surgery is called a [...]
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Oct 5, 2017
Hey friends,   It's been over 3 weeks since I last posted, and again, there's so much to tell and to process. :(   But I will try to post an update for each medical specialty:   Podiatry~ On September the 19th, I had toenail surgery under anesthesia to correct the ingrown toenails.  Everything went well, but my toes are still bleeding/draining even now which means I have to continue soaking my feet in epsom salts.  It also hurts too much to wear shoes.  I have a follow-up with my podiatrist next week to make sure everything is healing [...]
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Sep 13, 2017
Hey friends,   Thank you so much for praying for me and my family.  It means a lot to all of us!  Your love and support really encourages me. :)   My sister had her abdominal CT scan, but aside from some incidental findings, the scan was completely normal and didn't explain her symptoms at all. :(  She saw her GI specialist who recommended an upper GI endoscopy.  That was done on the 11th.  Other than a little tissue inflammation (the dr. biopsied 2 areas, and we're now waiting for results of those), the scope, too, was completely normal and again doesn't explain [...]
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Aug 24, 2017
"If I should say, 'My foot has slipped,' Your loving kindness, O Lord, will hold me up.  When my anxious thoughts multiply within me, Your consolations delight my soul." ~Psalm 94:18-19   Hey friends,   I don't even know where to begin. :(  These last several weeks have been so hard to say the least.  I'll try to explain everything, but just a warning---this is a super long update!!   First off, please please keep my sister in your prayers!  Over the course of 2 1/2 months, my sister has lost 12 pounds, and she continues to lose one pound [...]
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Aug 9, 2017
"But I will call on God, and the Lord will rescue me.  Morning, noon, and night, I cry out in my distress, and the Lord hears my voice.  He ransoms me and keeps me safe from the battle waged against me..." Psalm 55:16-18a   Hello friends,   Wow, where has the time gone??  I haven't blogged here in almost a whole month!   It's been a busy summer as my parents and I recently got back from Seattle.  They had a wedding to go to, so I wanted to come along so that I could see my pain dr. at UWMC. :)   Oh it was so good to see him! [...]
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Jul 14, 2017
Hi friends,   Wow!!  So much has happened, but I will just go right in and try to tell you everything..   The last week of June, I started feeling very off with episodes of nausea and severe head pain (not my "normal") all over....it even hurt to move my eyes. :(  So on Tuesday the 27th, I decided to check my temperature.  It was 100.9 degrees...I thought that was weird and wondered if it was registering correctly.  The next day, my nurse came over for my weekly blood draw and port needle/dressing site change.  She checked my vitals like she always does.  If I [...]
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Jun 21, 2017
"I have learned that faith means trusting in advance what will only make sense in reverse." ~Philip Yancey Hello friends,   Oh, where to begin??   On June 2nd, I decided to try a little more of my medical cannabis chocolate because I had a pounding migraine and my strong pain med wasn't helping.  Well, I had a terrible reaction to it which landed me in the ER by ambulance.  I experienced a pounding, high heart rate, muscle jerking all over (I was afraid all the jerking was going to cause a seizure), extreme muscle weakness, and drowsiness (so bad that I had to try my [...]
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Jun 1, 2017
Hello friends,   My family and I got back from CA on Sunday.  It was a super quick trip, but we were able to spend a lot of time together which was so special. :)   Our first two evenings there, I suddenly had terrible nausea and severe muscle weakness to the point that I couldn't lift my arms or even get up to brush my teeth.  All I could do was lay on the hotel bed.  It was even so hard to hold my phone up. :(  I couldn't help crying because it was scary.  This didn't happen at all when my parents and I traveled to San Diego in January.  I hate that I'm getting [...]
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